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girlcat36 #70724 02-28-2008 09:42 AM
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Cisplatin (and radiation) hit me hard. I had to have my second round of cisplatin a week after the ideal schedule because my neutrophil count was too low at first. As for the third one, I was neutropenic and just was not getting any better for a couple of weeks so they just skipped it. There's research that actually shows no diff. in the effectiveness of concurrent chemo and rad. if you get two vs. three rounds of chemo. How hard these things hit you don't necessarily have a lot to do with how fit you are.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Nelie #70743 02-28-2008 03:36 PM
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GeorgeH Offline OP
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Thanks Nelie, that's good info.

GeorgeH #70746 02-28-2008 04:06 PM
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GeorgeH,
Brian is, as usual, right on the mark. Always discuss problems and possible solutions with your Docs. What worked and was acceptable for one individual may not be good for you.
I hope all is going well with your treatment.
Cheers,
Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
girlcat36 #70764 02-29-2008 03:04 AM
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Also be careful of Cisplatin and hearing loss. If you hear any ringing in your ears tell your MO immediately. I didn't recognize "ringing in my ear" and now I have permanent high frequency loss in both ears.

Also CIB VHC has tons of protein.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #70774 02-29-2008 07:42 AM
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I did use Aquaphor on my skin before they gave me Biafine and the Aquaphor was much, much less effective than the Biafine which they gave me late in the process. I even have an Aloe product called Aloe Relief that I have used for years that seemed to work better than the Aquaphor. Biafine cannot be used on open wounds so if your skin has now cracked, you would have to wait for that to heal before using. Ask your doc about it.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Eileen #70776 02-29-2008 08:10 AM
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We thought the aloe vera gel worked better than the prescribed aquaphor...healed better and was way less greasy.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #70877 03-01-2008 07:11 PM
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George

The BC Cancer Agency suggested I use WellSkin Glaxal Base. It's obviously available in Canada. It worked great for my skin, apart from some minor itching I didn't have any skin problems with 35 radiation sessions.

Best of luck,

Sam


SCC base tongue Dx Mar 07 (age 43), 35x radiation, 7x cysplatin, treatment ended 6/22/07
tritucker #70883 03-02-2008 02:02 AM
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I was also given someting called "Radiagel" to try by the radiation oncology nurse. If I am recalling right, that helped somewhat but the Biafine worked better.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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