| | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | He likely avoided the question for reasons that we will not know, but usually this is to prevent late stage cancer patients from developing a negative outlook about their future. A lesion that is wrapped around the carotid artery is a late stage cancer, and is difficult to treat. This is just speculation on my part, but I guarantee you, no one gets treated at MDACC in Houston without their disease being staged. This is an institution that follows strict guidelines for treatments guided by staging.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL Scoylass, you made me laugh when you told me what you thought I said.I still have 23, had more before this OC started,, and they have to pull them because the teeth wil decay and then rot > that will cause infection,, so there fore bye bye teeth.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL i sure make typos.. scotlass.. there i got it
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2007 Posts: 17 Member | | OP Member
Joined: Dec 2007 Posts: 17 | David & Brian, thank you for your comments. I found it strange too that he responded the way he did, Brian you are probably right regarding the negativity part..... I think it was the dentist who did all the extractions she questioned. She has an app. with the chemo oncologist and she may ask him. Today they did the fitting for the mask and as soon as the mouth is healed treatment will begin. It started with a lump on the neck and the surgeon here went in to remove it and sent off the biopsy, after surgery he explained to her husband that he could not get it all because of the carotid artery........ so they decided to get a second opinion at MDA and now she has decided to stay there and let them do the treatment. She is very upbeat and has a very positive attitude so that will help a great deal. Pet scan shows it is confined to the neck. I know from experience she must worry though. All I can do is support her and pray for all who go through the road to recovery, not an easy journey for sure.
Scotslass,friend of June, diagnosed in Oct.2007 and beginning treatment this month chemo and radiation.Cancer in the neck with unknown primary...wrapped around carotid artery.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Meet my chemo oncologist wed. Be a shame if it was a good looking lady LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2007 Posts: 17 Member | | OP Member
Joined: Dec 2007 Posts: 17 | Jim, my friend had 15 extracted last friday and will begin her radiation and chemo as soon as her mouth heals, I think they told her 12 to 14 days. She is coming home for a few days before treatment begins, she has an app on wed with chemo oncologist to discuss treatment, hope your app goes well too, take care.
Scotslass,friend of June, diagnosed in Oct.2007 and beginning treatment this month chemo and radiation.Cancer in the neck with unknown primary...wrapped around carotid artery.
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Oh boy---seems like Wednesday is a big day all round!
Good luck to June and Jim--you're heading for 'cures'!!
Bren
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thank you Scotlass and Brenda. I hope it's on the way to cures, but the way it feels today I have my wonders. Still have a stitch or 2 that didn't dissolve , another white spot on my tongue and a lump on it about 1/2 way back. I been livin on those happy meds today. LOL I hope you all are having great days on this snow covered , snow shoveling fridgid day
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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