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#67362 01-12-2008 11:46 AM
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Hello to everyone. My best friend went down to MDA last week for treatment for squamous cell cancer and she calls me every day to update me. Yesterday they removed 15 teeth as she will be getting chemo and radiation beginning in a couple of weeks. I have been reading here extensively for the last month and I have learned so much and without a doubt is the best site I have found, just seems like one big family. I wanted to send it to her but she does not want to read about it, so I respect that decision. I know she has a rough road ahead and I will always be here for her. I am a 4 year bc survivor so can relate to a lot of it. I wish everyone all the best and many thanks for sharing.


Scotslass,friend of June, diagnosed in Oct.2007 and beginning treatment this month chemo and radiation.Cancer in the neck with unknown primary...wrapped around carotid artery.
scotslass #67365 01-12-2008 12:00 PM
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Welcome scotslass!!
Your friend is lucky to have your love and support. You will be able to help her by seeking information for her without disrespecting her wishes.
If she ever decides to have a look at this site I'm sure she would find it helpful.
If you have any questions that I may be able to help you with just ask or PM me. Feel free to e-mail me as well if you wish.
I'll say some prayers for her.

Cheers,

Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
scotslass #67366 01-12-2008 12:01 PM
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Hello and welcome to OCF! Sorry to hear about your friend, especially regarding the need to pull her teeth before chemo & radiation.
I, too, am a two-time BC survivor, but this OC is a different demon altogether, I have found.
Please convey best wishes to your friend as she begins this journey, and stay with us if you will. There is much to learn and share!

Lois & Buzz in NC


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
emmylou1951 #67372 01-12-2008 02:49 PM
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Och aye, welcome!
Ask, vent, wonder---and receive all the support and information you will need to support her.
Even if she 'doesn't want to know about this site', you will be able to pass on information to her when she has questions and concerns---which she sure will have!
And others have printed off relevant posts/pieces of information for friends/family and found that they've slowly come round.
You are certainly in the best place.
Can you go to your 'My Stuff' and add something in your signature space to tell us where your friend's cancer is/dates etc.

Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
brenfran25 #67381 01-12-2008 03:57 PM
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Many thanks to all for the welcome, I will keep you updated on her treatment and I am sure I will have many questions.Brenda I will go to "my stuff" and see if I can give more info on her diagnosis, She did ask one of the many doctors that she is seeing what stage was it at and he told that they do not stage for head and neck cancer, but she has a meeting with chemo oncologist wed and she will ask him.
Shirley


Scotslass,friend of June, diagnosed in Oct.2007 and beginning treatment this month chemo and radiation.Cancer in the neck with unknown primary...wrapped around carotid artery.
scotslass #67385 01-12-2008 04:06 PM
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Scotlass, is she getting rad implnats in her tongue. I have to get all my teeth pulled and then they are going to put the implant seeds in my tongue. I am waitng for ins approval but should get it because this is a medical issue. I feel you will be a good provider for her and wish you well. I have a reoccurance and didn't get rad or chemo in Aug for go around with this OC. Both sides of my tongue this time.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #67388 01-12-2008 04:35 PM
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Jim, I will ask her tomorrow when she calls about the implant, she has all her front teeth left so I don't know if maybe she is getting a bridge or implants........... right now she just wants it all over with, she has no idea that it is going to be a long road ahead but she has a very positive attitude, how are you doing now, you always seem cheerful and I smile a lot at your posts.


Scotslass,friend of June, diagnosed in Oct.2007 and beginning treatment this month chemo and radiation.Cancer in the neck with unknown primary...wrapped around carotid artery.
scotslass #67390 01-12-2008 04:41 PM
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Jim, just re-read your post and now I realize the question you asked was concerning RAD implants..... silly me, thought you were talking about teeth implants........... she will be going through 6 weeks of radiation, with perhaps more surgery afterwards.


Scotslass,friend of June, diagnosed in Oct.2007 and beginning treatment this month chemo and radiation.Cancer in the neck with unknown primary...wrapped around carotid artery.
scotslass #67442 01-13-2008 09:42 AM
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Welcome!!
I am here for the same reasons with my Dad. He doesn't want to read it for himself, but I read, post questions and cut and paste specifics to send to him via from time to time. I figure he might read it, he might not, but at least it's there when he is ready! This board has been fantastic for me!


Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08

JUNE 30, 2008 Officially CANCER FREE!!!
LarrysDaughter #67523 01-14-2008 12:38 PM
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Scotslass,

You said she was going to MDA and that they told her they don't stage for H&N cancers?? I have never heard that one, especially from MDA. I think she needs to ask another doctor.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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