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Thanks for your answer, Christine....Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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Regarding HBO treatments I have a question of others who have undergone them. I did a total of 40 dives with the first of which were done last October. I did 20 initially then followed with 10 after dental procedure. I was then prescribed 10 more later due to continued problems this past Spring. The greatest side effect I had and still have is vision problems. Prior to any dives I had perfect distance vision but had to use the "readers" at 2.50 strength. HBO gave me an odd visual reaction as I now only need "readers" of 1.25 strength and sometimes none at all but my distance vision is blurred/fuzzy. The Doc I dealt with at the HBO center told me that the visual changes would only be temporary and I should return to normal in every way after about 6 to 8 weeks following my last dive. Well, that was now 6 months ago and nothing has changed. I have held off on getting an eye exam with needed glasses as I am afraid that if I do that my vision is still going to change back. It will then be a waste of time and money to get glasses if the vision does eventually change back to pre-HBO treatment condition.

Has anyone else experienced what is starting to appear as permanent visual changes as opposed to temporary changes?

Thanks,

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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I just finished 45 dives, and had blurred/fuzzy distance vision that lasted for about 2 weeks after treatment. The doctor that treated me said vision changes are sometimes permanent, but that is rare. To me 6 months seems to be a rare, permanent change. Have you contacted the doctor that treated you for advice?


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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Hi Bill

I had 30 dives earlier this year and also encountered the same problems with blurred vision and was also advised that the problem would PROBABLY be temporary. Five months on my vision had not improved and I had to get my lenses upgraded.

I did contact the Dr at the HBO facility and he said that usually they do return to norm, but they should have done so by about 12 weeks after the final HBO treatment.

He also mentioned that HBO treatments have been known to cause cataracts in some patients.

Karen

Last edited by Karen Rose; 09-18-2008 01:18 AM.

46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Joined: Jun 2007
Posts: 10,507
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I will ask my HBO doc about this. My vision is a little off, nothing to complain about at all. Just distance isnt as clear as it had been.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Following my post of 9/17 on the vision topic I spoke with the Doc yesterday who oversaw my case while doing HBO. He says that since my vision is still not back to what it was pre-HBO after all of these months it has probably been changed permanently. He is also recommending that I go ahead and get with an Opthamologist as the next step. He also said that it was rare that the HBO resulted in permanent changes.

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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Hi All, other than the vision changes, did HBO help with infection and teeth issues or whatever you were having HBO for? I just finished my 6th dive today,I go to 20, then my oral surgeon will check me, to determine whether he can pull the infected tooth, I believe I will have 10 more treatments after that.....just hoping the HBO helps the infection! Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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Carol

Thats usually the norm for HBO. 20 dives before your procedure then 10 after. There are all kinds of facts/studies about HBO curing all kinds of things. Its an interesting subject with what it can do. Ive gone for about 45 or so dives with a total of 70 scheduled.

My issues arent just dental work. HBO has been what I credit to helping me to recover from 2 rounds of OC in less than 1 year. Without a caregiver, I suffered more than alot of patients did and got 3 hospital stays as an added bonus for dehydration/infections/malnutrition. Physically I was so weak, I was anemic with very low blood pressure and a constant severe jaw pain. I now have energy, my jaw doesnt hurt at all it has helped my arthritis in my back and my anemia is gone.
It has helped me with the painful physical therapy for trismus and I cant say enough good things about it.

Others may disagree, and thats ok. Im the biggest non-believer there is about anything but the standard medical routines. This has worked wonders for me.

Besty of luck with your treatments.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 1,116
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Thank you Christine for your reply, so happy to hear your good results.....where are you having yours done? Thanks, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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Posts: 794
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My mom has had over 30 HBO tx's, she looks and feels good. I can't get over how much good it has done for her skin in her neck area, she had such severe scarring from her tx's. She has to take sudafed before going each time because of the pressure she feels.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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