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#61708 - 09/09/07 11:45 AM question about acupuneture
paulie Offline
Contributing Member (25+ posts)

Registered: 08/10/07
Posts: 41
Loc: virginia
I ellected to try this for my dry mouth and about all i can tell is that i am releived of 500.00, but now i am having a pulling feeling around my jaw,no pain or discomfort. I was told that this is due to the blood flowing better now. Anyone ever tried this ?
I am out of treatment for 25 months now eating a bit better and am up to 148 lbs.
Thanks for any feed back i may receive.

#61709 - 09/09/07 02:34 PM Re: question about acupuneture
Talbill Offline
Senior Member (100+ posts)

Registered: 11/17/06
Posts: 165
Loc: North Atlanta Ga area
Paul, I checked into this a while back and from what I was told it was a crap shoot. No medical evidence of possible improvement but no evidence of it not working. I hope it works well for you and I will be watching for your updates. smile
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 smile

#61710 - 09/09/07 02:46 PM Re: question about acupuneture
paulie Offline
Contributing Member (25+ posts)

Registered: 08/10/07
Posts: 41
Loc: virginia
I went eight times and dont think i am going to try anymore. Thanks for the feed back.

#61711 - 09/09/07 03:26 PM Re: question about acupuneture
Gary Offline
Patient Advocate (old timer, 2000 posts)

Registered: 11/27/02
Posts: 3552
Loc: San Francisco CA
Do a search in the adjunctive therapy section. This topic has been discussed many times. People have had varying results but mostly a lighter wallet.
Gary Allsebrook
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)

#61712 - 09/09/07 03:42 PM Re: question about acupuneture
paulie Offline
Contributing Member (25+ posts)

Registered: 08/10/07
Posts: 41
Loc: virginia
sorry if i put this in the wrong place
I was wondering about the pulling feeling in my jaw. Could it be increased blood flow? Or just in my little pee brain? Or the acupuncture?

#61713 - 09/09/07 10:01 PM Re: question about acupuneture
mhupe Offline
"Above & Beyond" Member (500+ posts)

Registered: 06/02/07
Posts: 718
Loc: Wisconsin
I think you might want to get your jaw checked out. I have used acupuncture for different reasons and I have never had any discomfort post treatment. Although, your protocol, I'm sure, was quite different. But, regardless, I'd get it checked out by a doctor if I were you. How long have you been in discomfort?
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.

#61714 - 09/11/07 08:25 PM Re: question about acupuneture
JoAnne1981 Offline
"Above & Beyond" Member (300+ posts)

Registered: 04/05/06
Posts: 378
Loc: Princeton NJ
Hi Paulie, Jack was one of the ones with a positive experience with acupuncture but as everyone has told you there is NO medical evidence either way. It was probably the 8th or 9th visit that occurred. We were told it either works or it doesn't. make your own judgment on that one.
Jack never had any discomfort or pulling on the jaw from acupuncture. I'd get the jaw checked out. Do you have any trismus? That might cause a sensation like you're describing.
Our rule of thumb is we get it all checked out no matter how small it seems - this way we don't agonize over it more than we need to.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.


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