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#58882 09-09-2006 03:37 PM
Joined: Jun 2004
Posts: 155
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Senior Member (100+ posts)

Joined: Jun 2004
Posts: 155
I understand security concerns but does it strike anyone that this whole topic is prompted by idiocy bordering on lunacy. It seems to me if airlines can collect all kinds of data on us including the ordering of special meals on some flights arrangements for escorts etc there should a uniform system that allows you to pre flight notify the airline of special needs and if necessary have a Doc fax them a Rx for whatever you need so it can be noted right on your boarding pass. If we can purchase prescription drugs over the internet the same verifying system? could be used to confirm a passengers needs.
OH would that constitute customer service?
AAARGHH
Denise


Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
#58883 09-10-2006 12:57 PM
Joined: Sep 2002
Posts: 642
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Sep 2002
Posts: 642
Denise,
I could not agree with you more. We are scheduled to fly to CA from Texas next week and since my treatment I have never flown without a couple of bottles of water and usually a few bottles of Boost in my backpack.(Back when I could not swallow well, I took a thermos of soup on every flight. People currently in that situation are just out of luck I guess.) My wife suggests that I get my RO to give me a letter explaining the situation, but since water and Boost aren't prescribed, I cannot imagine that it would make much difference to some TSA employee.
The whole thing is a big joke as far as I am concerned. About the last thing that I worry about in day to day in life is terrorists.

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
#58884 09-10-2006 01:25 PM
Joined: Feb 2005
Posts: 2,019
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Feb 2005
Posts: 2,019
I'm not a lawyer but doesn't it violate the Americans with Disabilities Act if the only way you can "eat" is to drink something like ensure or soup and they don't either offer you that on the plane or let you bring it on board? If they are offering other people food, they have to give people with a swallowing disability accomodations so they can also be fed, right?

Or are we just out of luck when the ADA comes up against homeland security?

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#58885 09-10-2006 02:29 PM
Joined: May 2006
Posts: 720
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"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

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Nelie -- That's an interesting question, and I hope you'll send it in an e-mail to Ricardo, the LA Times reporter who is looking into this. His contact information is in Eileen's posting (above), or in a separate thread in this forum. I also hope you'll agree to speak with him, since it's anecdotes like yours -- that you are going to drive seven hours to DC for a conference, rather than fly -- that will bring this issue to life.

(Full disclosure: Ricardo and I work together.)


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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