#58792 08-13-2006 10:55 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Hello to all, Well here I go again. I am just a little more than 6 months out. Now have concern about red sore on left side of tongue! How can this be? This sore was check in June. No problem, now sore is still there and is giving me the same feelings I had back in 2004. Sore is tender to touch, RED, also hurts when drinking something cold. Also mouth feels inflamed. I just had 6 mo. Ct. all clear. But I guess the tongue does not show? or does it?  I called Head & Neck and talked with Nurse, she will call me Monday to see about having me come in to take another look at it. I am trying to keep my head on streight and not jump to conclusions. I must admitt I just do not want to do an instant replay!  I am just now getting on my feet again as most of you know. AM I GUN SHY ? YOU BET! Thanks, Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | 
#58793 08-13-2006 03:14 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Diane, got my fingers and toes crossed for you that this is just an irritation. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#58794 08-14-2006 04:05 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Diane, I am hoping and praying for it to be NOTHING but maybe an irritation for you.
I have had several scares, this time they removed some of the flap for biopsy, getting results tomorrow.....
Let us know your results....God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#58795 08-15-2006 03:50 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Diane-
We are all gun shy! Sometimes the anxiety of new scares is worst than the initial treatment. Take a deep breath and hang in there! Our hopes and thoughts are with you. Love, Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
| | |
#58796 08-15-2006 09:28 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Remember It isn't Cancer until it is looked at on a cellular level. Make your ENT schedule you for a biopsy to put your mind at ease. We are all frightened by the least little unusual thing in or around our original cancer sight.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
| | |
#58797 08-17-2006 09:36 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Ok, here is the deal. Never heard back from Nurse. So I guess she got busy. I do go back on Sept. 7 to see oncologist will have it checked then. I also have CT for that day too along with blood work. If this is a sore only as most of you think. What do you suggest to help heal it? Soda/Salt/water? I am trying to keep my cool Darrell  But as you say we get alittle touchy when it is around our cancer site. On a good note, I am feeling a lot stronger & and trying to eat different things. (if they do not hurt or sting) Thank you all for your support. If I find out anything different I will let you know. Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | |
#58798 09-08-2006 05:21 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Hi to all,
I did get in to see my Head & Neck Surgeon Sept.. 7th.
This is the plan, He feels it is ok, but he is giving me some meds to see if it clears in 3 weeks. If it does not clear, he will remove it to be on the safe side of things.
So that is where it is at. I will try not to let it bother me for now. I will wait & see how the meds. work.
take care
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | |
#58799 09-21-2006 07:43 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Update on ME
Well, it looks like the meds. did not work.
So I am off to the Head & Neck Surgeon on the 29th. He said he would remove it if not gone. Well now it feels like there are 2 bumps !
The idea of this whole thing has me speachless. My mouth does feel like I am talking with cotton stuffed in there. Which I think is dry mounth?
Not sure of how much tongue I will loose this time. Will let you know.
bye for now
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | |
#58800 09-21-2006 11:32 AM | Joined: May 2003 Posts: 102 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2003 Posts: 102 | Diane,
Please try your very best to remain calm. The tension of these situations can drain all of the energy and spirit out of you.
My positive thoughts and daily prayers are coming your way.
Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node. AdenoC 1 sal gland. Two add. reconstrc. surgeries for adhesions. Recurrence 7/06- Sub-Mand AdenoC. Mets to both lungs. Lost her battle 5/4/07.
| | |
#58801 09-21-2006 02:04 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Diane, we'll be thinking about you and anxiously awaiting your next post. Good Luck. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
