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I'm not sure how to go about finding out info on how to relieve constipation. My husband is one yr. out and still uses PEG (6 bottles of BOOST PLUS daily) while eating by mouth once a day (less than 1/2 c. of food) and finds constipation is a big problem. He is taking Benefiber twice a day but still has the problem. May be due to the Dilaudid he takes for chronic pain in jaw (exposed jawbone since extraction of teeth and radiation/lack of healing)./And a second problem--pain due to exposed jawbone. Site where teeth were extracted hasn't healed after 2 surgeries and hyperbaric treatments. Help with either of these problems is welcome!

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Though I am on a liquid diet I was suffering major big time with this. I bought a bag of Flax Meal at Kroger for $2.00 and all you need is 2 TBS. per day. It does the trick in about 3 days and as long as you keep taking it things "come out" fine.

Blessings,
Barb~


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Hello, Mawalton, I almost hate to suggest this because we are all so diferent. But John is experiencing constipation or the runs, depending on the day. When he is stopped up, he takes 1 Correctol[some days just a half]. This is a woman's laxitive and very gentle.It has worked for him for almost a month now.Can't help with the other pain issue- it sounds really tough to deal with. Hope you both can keep your spirits up. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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Mawalton,

I took Senna or Senna S 2x daily seemingly forever. Another key is to move around by talking regular walks and down lots of water. Even the fiber stuff won't help without water. As a general rule, take your weight divided by 2. This is the minimum amount of water to drink each and every day. I don't know if you juice but cabbage juice does wonders for constipation and overall intestinal health.

Sorry I don't have anything to offer on the jaw pain.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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Ed, tried to send you a private message- your mailbox is full. It was a private message because I figured everyone who read this would laugh. How in the heck do you juice a cabbage? or do you boil it and use the liquid it cooked in confused Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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boil all root veg drain and drink it should work good luck best regards maz

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I too had the same problem and I also use a 6-pak of boost daily. Who would think being constipated would be a problem on a liquid diet? But i too take pain pills for my throat which causes this. What i do is through my peg tube is do 1/2 dose of MOM daily, start off with full doses every eight hours till results then back off to 1/2 dose. This has worked wonders for me as seena s and metamusil gets laughed at in my system and doesnt touch a thing.
As far as your mouth pain my prayers are with you and im so sorry about what your going through. Not sure if you tried the triple mix for right before meals or not but might be worth a shot.
I sure hope these things help you be more comfortable and will check back for your response.
BLESS YOU
Bob Grey

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You have to use a juicer that can masticate and press like a Norwalk.

Ed

Sorry for the full PM's. I didn't know we could only store 60 and had to do some housekeeping.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Apr 2005
Posts: 2,676
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Ed, you are the first person I've heard word 'masticate" from since since my Dad told me as a very young child to "masticate my food thoroughly". Your post really made me smile laugh I don't have a juicer, but am gonna give it the old college try in my blender. Thanks, Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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