#58036 04-02-2006 02:35 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I have been having alot of issues with my lips the past two to three months, in particular my bottom lip. It's beyond any type of chapped lips, this hurts and is getting to be a problem. They will start to feel perfectly fine and then it seems to start all over again with the burning, small blisters and sore areas, etc. I should own stock in vaseline intensive care lip therapy. I didn't have these issues until January, after we took a ski trip. About two days after we got home my lips swelled up like a balloon and after some steroids, etc., they went down. Took about three to four weeks and they started to feel better..............then they would swell up again...............start to feel better. It's really strange. My bottom lip is always sore, red and has kind of a burning sensation. Anyone else experience this?
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#58037 04-02-2006 02:55 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Minnie,I know you are an "outdoor" gal. Have seen you on a horse. But being a [long ago skier], I wonder if your lips got excessive exposure to the sun and cold, and maybe the sun block you were using on your lips while skiing had a chemical in it that you are allergic to? Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#58038 04-02-2006 05:00 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Dear Minnie,
Not sure if this is your problem or this will help at all, but a long time ago I learned that any lip product that has "petrolatum" in it will cause the lips to dry out. It actually sucks the moisture out. Amazing as it may seem, most "Vaseline" products and many other brands are petroleum based. Even Chap Stick has it. I think thatt Bonnie Belle (sp) is one brand that has no petrolatum in it.
Check the ingredints in what you are using and try switching. If you can't find anything in your area, send me your address. I always stock up when I ski out west where these are more readily available and I'm pretty sure that I have extras in the house. I'll send you one.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#58039 04-03-2006 11:24 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Minnea
Could you have picked up the "cold sore" virus?
Exposure to sun can make it kick up.
When I get this I use a prescription product , Denavir, and it really helps.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#58040 04-03-2006 07:04 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Minnie,
After radiation my mom being blonde and blue eyed developed skin cancers on her scalp, lips and shoulders. They are squamous cell but very slow growing skin cancers. Maybe you should see a dermatologist. Most of them were frozen off but some had to be surgically removed.
I have heard the same thing as Jerry regarding the petroleum based lip ointments. I don't know if you guys have Victoria's Secret out there but they make a great lip moisturizer that works miracles for your lips. Let me know if you would like me to send you a tube?
Take Care,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#58041 04-03-2006 07:05 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Minnie,
After radiation my mom being blonde and blue eyed developed skin cancers on her scalp, lips and shoulders. They are squamous cell but very slow growing skin cancers. Maybe you should see a dermatologist. Most of them were frozen off but some had to be surgically removed.
I have heard the same thing as Jerry regarding the petroleum based lip ointments. I don't know if you guys have Victoria's Secret out there but they make a great lip moisturizer that works miracles for your lips. Let me know if you would like me to send you a tube?
Take Care,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#58042 04-04-2006 06:10 AM | Joined: Mar 2006 Posts: 26 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2006 Posts: 26 | Hi Minniea, I think you replied to a post from me a couple of weeks ago. I had the same exact thing done that you have had , but, my was done Feb 28 of this year. Starting Rad on the 18 of April. Anyway, I have extreme pain in my lower lip. To the touch, it feels numb, but, it hurts so badly and feels like it is on fire. I told Docs about this yesterday, and needless to say, they got side tracked and I forgot to ask them again.
I know this wasn't any help, but, when I go back, I'll talk to them again.
Your "pain in the lip" buddy...LOL
Molly | | |
#58043 04-04-2006 08:01 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | My personal experience with Chap Stick is that it is an absolutely worthless product that actually makes the condition worse. Try speaking with a local esthetician and get a product that works.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#58044 04-04-2006 09:35 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Addendum I spoke with my wife, who is a licensed esthetician and she recommended: Epicuren Lip Balm - comes in stick or tub forms, spf 15 - no petroleum. Another is Zilactin-Lip, also in stick form - indicated for sun blisters, dry, chapped lips and cold sores. spf 24 - no petroleum Zila Pharmacueticals I was not able to verify the existence of the product although, interestingly, thay are marketing the "Viz Lite Plus" for oral cancer detection http://www.vizilite.com/
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#58045 04-04-2006 10:12 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Gary
Chap stick has on peculiar property, it is brilliant for a sore nose during a streaming cold..
Sorry I digress from the topic
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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