#58028 03-25-2006 08:03 AM | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jan 2006 Posts: 101 | I have read and read on the forum about foods. Erik is almost done with treatment. YEAH!!! As Many of you have experienced he has no sense of taste right now. But he is as hungry as a bear. He is getting 7+ cans of food by PEG, but he is still hungry (I think some of it is in his head, he thinks he should be eating by mouth) Nothing tastes and most everything burns, is there anything that might come through with flavor that could satisfy him? All milk products cause terrible lactose problems! I think it would be great to start a thread with just recipes that worked so we could all try them too!!!
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads.
Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol-
3rd reoccurrence 5/18/12- partial glossectomy
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#58029 03-25-2006 09:30 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Jennie,
If you go to the top of this page and click on search (it is just under New Topic and Post Reply) you will get a search engine for the forum.
I typed in "food" and then did another search for "recipes". There is a lot here that I have seen over the past year as many people have asked the same questions.
Good luck and I hope that Erik is doing better real soon.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#58030 03-25-2006 08:35 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Jennie. He should be eating by mouth if he is able & supplement with peg feeding or vice versa. He'll have to experiment to see what tastes good that he can swallow. Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#58031 04-10-2006 05:34 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Jennie,
Hope all is ok. the first thing I could eat was oat meal. I could only eat a little bit but it gave me the feeling & satisfaction of eating.
Plus it did not hurt my mouth!
DM
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#58032 04-10-2006 02:47 PM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2006 Posts: 107 | Hello Jennie,
The first things that I could eat were yogurt, Tapioca pudding and I don't suggest he try this one but it worked for me and god knows as to why but artichoke salsa (mild) and scrabbled eggs. We all react to different things but I know the feeling about being hungry as a bear, I could not wait to get rid of that dreaded, yet life sustaining, PEG tube. The one thing that is foe sure is that I kept trying something everyday and things that did not work I went back to them in a few weeks, now I can eat most everything and about 80% of my taste is back and I am only 4 months after radiation(33 IMRT sessions) and three months tomorrow post neck dissection, Hang in there and tell your husband to keep pushing ahead and look for small gains and victories, they add up. Always lenny | | |
#58033 04-10-2006 03:27 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Beef bullion, chicken broth, any clear consomme would be a good place to start "taste testing". Can he chew and swallow? That will help to let us know more ideas to send you. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#58034 04-10-2006 07:36 PM | Joined: Apr 2006 Posts: 10 Member | | Member
Joined: Apr 2006 Posts: 10 | Jennie,
My husband found cream of wheat went down fairly easily, also oatmeal(watery), broth was tasty too. Careful with the spices though, they burn easily. Jello was good for him too . Hope this helps, Robin | | |
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