#58002 03-21-2006 02:46 PM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | Just a quick note to report that Barry had his second (6 month) PET/CT scan and it came back clear, showing no sign of cancer in any area. We met with his RO and also, dental oncologist today, and they were both very pleased -- did physical exams, the dental onc. tested salivary function which he pronounced "good" though wanted him to continue the Evoxac until he sees him again in a few months. Teeth all look good -- so far... RO will see him in three months but no more scans for at least another 6 months. He will be entering an HPV-16 vaccine trial later this spring, which should be pretty interesting. The PET scan did show, however, that he still has inflammation in his lung which could be residual from the pneumonia he had last fall or even a new infection -- we think he is still aspirating a bit when he eats. RO has given him some antibiotics and wants to watch this, did a chest xray today and they'll do another in a month. But tomorrow he's going to book his tickets back to England so he can visit his mum -- she has of course been very worried about him. I think she will be happy -- he looks great although maybe needs to gain about 10 more pounds. He is eating almost everything now, and even can handle some *mildly* spicy foods again... Anyway, we are both pretty happy too! Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
| | | 
#58003 03-21-2006 04:06 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Yeah for BOTH of you. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#58004 03-21-2006 05:47 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Great news Gail (and Barry, of course)! I am hoping you have many more excellent trips to the doctor like this one.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | |
#58005 03-22-2006 01:03 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Gail, That's great news. Barry's mother must be really delighted he's come out of this so well and is on his way to see her. I'm sure it was hard on her being so far from him during his battle. Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | |
#58006 03-23-2006 07:33 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Great news Barry and Gail. Somehow moms never really believe we survived this until they see us in person. I'm certain he'll enjoy the trip.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
