#57817 01-30-2006 07:55 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | My shoulders are tired today, but thats it! I'm about 2 years out from dx & life is good! Dry mouth at night & tight right side neck most of the time but I am strong & able. Time has really flown by & it just sort of dawned on me the other day that I am a survivor of advanced stage IV tongue cancer. I feel extremely fortunate to be alive today. Any other shreddin' 44 year old middle aged snowboarders? Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#57818 01-31-2006 06:27 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | No snowboarder here but I LOVE sports and physical activity. I'm 44 too, will be 45 in August and life is GOOD again! I have the same neck problems you have also, but I am learning to adjust and accommodate when I'm doing something physical. Glad to hear you're doing well!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#57819 02-01-2006 05:19 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Erik,
At 60 years of age, I stick to skiing. I've gotten used to you boarders blowing by me on the slopes and it's nice that we've learned to co-exist. I do remember the days before boards were invented.
Spent 4 days in Aspen at the beginning of the month. Have to settle for the little Pocono Mountains the rest of the season. How's the skiing and boarding in your neck of the woods?
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#57820 02-02-2006 03:26 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Erik:
I hope you continue to dodge the cancer bullet and contine, like Jerry, to be an active outdoorsman. I am 60 also, but unlike Jerry, I have never been an avid outdoorsman or sportsman.I am more the science nerd type.I live in the country, does that count?
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#57821 02-02-2006 05:09 PM | Joined: Mar 2005 Posts: 35 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2005 Posts: 35 | I am 42 and 1 year out of treatment and vow to never slow down again and live ,y life to the fullest. I just had my checkup and a clean bill of health. I go to college full time plus work full time plus work on computers on the side plus have a wife and 4 kids to keep up with. I love snow skiing but never could skateboard so havnt tried snowboarding....as of yet. Its like after i healed up and started back to school my energy level tripled from what it was even before i was diagnosed. The best part is my outlook on life now, not that i was happy to get cancer but if there was something good that came out of it, it was an eye awakening experience that has changed me and am so much happier now. I have learned to over look the things that used to bug me or anger me.Life is great and no matter how long I have left on this earth I vow to be a better person from this.Glad to hear others are back to happy active lives and hope to continue hearing more. :-) | | |
#57822 02-03-2006 01:09 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Great news Erik, you animal! I only watch snowboarding on television and it tires me out! Looking forward to the big 5-0 in about 60+ days and wondering how to get back to the shape I was in just before treatment.
Congratulations Bob...from a fellow Jayhawk! Born and raised in Wichita...just down the road from you. I spent a lot of weekends at the Fireside and Barloga's (if that was how it was spelled). My old g/f worked at Hopkins and my uncle worked for Thomas Van Lines. Find one of those great bass ponds around there and I will drive up to join you!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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