#57701 01-14-2006 03:37 AM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jul 2005 Posts: 624 | Hi all --
Just a quick note to say Hi to everyone on the forum and also, hasta la vista as we are off to Mexico in a couple of days. (Back January 26)
Had last consult with our MO Tuesday -- she was very pleased with Barry's progress and how well he is doing re eating and being active. The consult notes from his many appointments (not all at the Kimmel CCC) are all on the Hopkins computer and she checked up on the input from dental onc etc., gave him yet another physical exam, and then shook our hands and said, "well, I don't expect to see you back here in this examining room again, go have fun in Mexico." We won't see her again for some months unless the next PET/CT (at end of March) shows a problem. Our RO and ENT will do the bulk of routine monitoring from now on.
Only issue now remaining is Barry needs to regain weight he lost -- about 10 pounds would be OK -- which is proving difficult but not unexpected based on many comments on this forum and from the nutritionist. He's eating well but is also very active so not many "excess calories" apparently. Birding in the Sierra Madres will probably not help, either though I have hopes for the famous coconut banana cream pie at our hotel!
Anyway, 'bye for a while...
Gail and Barry
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#57702 01-14-2006 04:39 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2005 Posts: 325 | Wonderful news! Have a glorious vacation, (and leave some banana cream pie for the other guests!) Happy Holidaying, Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#57703 01-14-2006 05:10 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 |
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#57704 01-14-2006 12:12 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | By all means, have a great vacation... Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#57705 01-14-2006 12:24 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Take lots of siesta`s and..... have fun. Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#57706 01-14-2006 03:44 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 |
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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