#57586 12-29-2005 11:17 AM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | Hi all --
Went up to Hopkins for Barry's 3-month post-treatment PET/CT scan (which is when they do the first one) -- he also saw his dental onc and had a color Doppler ultrasound of his right carotid as the enlarged cancerous lymph node had caused some narrowing (stenosis) and they wanted to see if that was resolved after treatment. They do scans every 6 months for two years on HNC patients, then less frequently.
Our RO nurse just called -- his PET/CT showed no abnormal activity, with no indication of any cancer remaining at base of tongue or the lymph nodes. Also, the artery stenosis is gone and the blood flow normal. Both wonderful news, esp. the first!! Nice to have some good news for the new year, 2005 was a "bit" rough for us...
The dental onc said everything looked very good, teeth good, etc. -- he did suggest Barry try Evoxac as he thinks it will improve his swallowing of more difficult foods, such as cooked meats (tho he did eat a pork chop last night, albeit with a lot of water). He also strongly seconded the use of the Xylitol gum to improve dental health and saliva flow.
So ending the year on a bright note --
Happy New Year to all on the forum, and a healthy 2006!
Gail and Barry
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#57587 12-29-2005 11:55 AM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Mar 2003 Posts: 251 | Gail,
Great news on Barry's results. Wishing you many more sighs of relief as the months and then years progress.
My husband actually went in for his 3-year post surgery exam yesterday, which went fine.
Best,
Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#57588 12-29-2005 05:04 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | What GREAT news, Gail! I know how stressful it is before every exam. Here's to a wonderful New Year for you and Barry and may you enjoy many more!!
Glad to hear your news, too, Anita!
Regards,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#57589 12-30-2005 07:04 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Great News Gail and Barry. I thought you guys were in Mexico enjoying the sun amd a well deserved vacation. May 2006 be Happy and healthy.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#57590 12-30-2005 07:37 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Gail and Barry, Wonderful news. Now go somewhere exotic and enjoy yourselves.....
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#57591 12-30-2005 11:30 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Many, many, congratulations and A BIG.... WOOOOHOOO!
Marica and Pete
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#57592 12-30-2005 02:10 PM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | We are off to Mexico January 16, back on the 25th. On Pacific coast and into the Sierra Madres. Who knows, maybe we will find the elusive Treasure there! (If not, maybe some very nice birds and good food. We are looking forward to the famous coconut banana cream pie at Daniel's in Copala).
Spoke to our RO nurse again today, next scan in 3 months, then onto the 6-month schedule -- recall that's what the radiology doc said yesterday, now that I think about it.
Right now we are putting all this out of our minds for the next few weeks...
Hapy New Year, all!
Gail and Barry
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#57593 12-31-2005 09:55 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Keep digging for that treasure and keep getting those good reports..
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#57594 01-01-2006 08:48 AM | Joined: Jul 2005 Posts: 150 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jul 2005 Posts: 150 |
Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
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#57595 01-02-2006 05:19 AM | Joined: Jul 2005 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2005 Posts: 54 | Great news - enjoy 2006. Continued healing.
Janet
Caregiver, Husband diagnosed 7/6/05 SCC left tonsil, T2N2bM0, Concurrent chemo/radiation begun 8/2/05 (Cisplatin). Received 2 cycles cisplatin, 38 radiation treatments. Completed course 9/27/05.
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#57596 01-02-2006 05:19 AM | Joined: Jul 2005 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2005 Posts: 54 | Great news - enjoy 2006. Continued healing.
Janet
Caregiver, Husband diagnosed 7/6/05 SCC left tonsil, T2N2bM0, Concurrent chemo/radiation begun 8/2/05 (Cisplatin). Received 2 cycles cisplatin, 38 radiation treatments. Completed course 9/27/05.
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