#57566 12-26-2005 05:25 AM | Joined: Dec 2005 Posts: 24 Member | OP Member Joined: Dec 2005 Posts: 24 | Hi, I feel really stupid posting this because when I think about it, it sounds stupid but I really would love to know if anyone else felt the way I'm doing at the moment. Some of you might not be able to remember if you are into years of getting the first all clear but anyone who can remember I'd be grateful for any replies. I am now almost 8 months post radiation treatment and 7 months on from being given the all clear (for now). On Christmas eve I started with a cold and today (December 26th) it's a really heavy head cold which under normal circumstances I wouldn't have thought twice about it, just got on and coped with it but I keep having these terrible thoughts and was just wondering is it just me or did/do others think this way. My question is when you got your first cold after being given the all clear did anyone think that the cold virus could set the cancer off again? Of course I have everything associated with a cold, sore throat, coughing, croaky voice, runny nose etc etc and it's really worring me and with it being christmas time I can't call anyone medical to ask advice.. sorry to have been a bother and for asking such a silly question | | |
#57567 12-26-2005 06:59 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | I never thought of the cold "setting off" the cancer again. (In fact I thought a high fever might help kill it off!)
I do note that colds do not feel the same as they used to. The symptoms are often different from left side to right, something that I attribute to the surgery and radiation. The feeling that a normal cold might be something more (like a return of "it") is a common reaction. After a while these thoughts fade. It is part of your New Life!
Take care.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#57568 12-26-2005 07:16 AM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | Thanks for voicing this issue. It surprises me how quickly my imagination can run to the worst possible explanation for a cold or a sniffle or a croaky voice. Its not nearly as scary after two or three occurances, but it still rattles me a bit. I think it is a bit of 'post traumatic stress' that alerts us so strongly after cancer - vaguely like the soldier who startles at sharp noises long after s/he is home.
Live now, worry later. Tom
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#57569 12-26-2005 03:32 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2002 Posts: 541 | I think it is very normal to associate any illness with cancer recurrence. Every time I had a sore throat or cold especially during the time when the treatment was just over for a short while, I would wonder if cancer relapsed or not. What I did would be to get an ENT for a thorough check as soon as possible. Just worrying can't keep the mind in peace. In Hong Kong, medical service is always available even during holidays and I wouldn't want to wait.
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#57570 12-26-2005 04:57 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Hey, uksweetheart, wish I were closer I would make you some homemade chicken soup and a hot toddy and that cold would go away! Hang in there. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#57571 12-26-2005 05:06 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | Welcome to survivorship. Anyone who has had a close call with infinity, with our real mortality, is forever affected by it. While it is true that to some extent this fear is subdued by time, I personally find that it never goes away. While I have personally chosen to stay involved with oral cancer, even those who I meet that have tried to put it far behind them, are never completely successful. Survivorship includes some degree of PTS, and even real fear. I am over 3 decades away from Vietnam and my experiences of war, yet it comes to my mind frequently. I am 6 years from cancer, and not a day goes by that it is not part of my thought process. While some of that is in helping others, I cannot help but see myself in those that are doing less well than I. I cannot have a toothache or a small simple sore in my mouth without a feeling in the pit of my stomach that is unmistakable to me. It is plain fear. The difference is now, a few years out from the experience, I am able to choke it down and reason my way through it. But that does not stop the feelings from coming to me. What you feel is not only normal, but most likely appropriate. While uncomfortable, fear is a rational response to what we have been through. The trick is to keep it under control and realistic.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#57572 12-26-2005 05:20 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Well said, Brian, and also true of much of what we experience in our lifetime.
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#57573 12-28-2005 10:49 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2004 Posts: 218 | I agreee with Tom. The first time sent me right off the edge. Plus with limited lymph function it made me really scared cause I swelled up a little in the neck.
My doctor said "just because you had cancer, doesnt mean you wont get a cold ever again" Good advice.
Anyway I have had 5 or 6 colds since the all clear and I dont think too much about it anymore. I still wonder when its not going to be just a cold, but hey, it will be like that forever I guess..........
Good things -rh
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04. 41 Years Old At Diagnosis
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#57574 12-28-2005 01:49 PM | Joined: Nov 2005 Posts: 105 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Nov 2005 Posts: 105 | I don't worry about colds as much as my wife does. As soon as I get the sniffles or a cough, she's worrying. Same with my parents. I hate to see them spend so much energy worrying about me, but if the shoe was on the other foot, I'd be the same way. In the end I guess I'm fortunate to have people who worry about me.
John
SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
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