#57351 12-17-2005 02:52 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi,
If you are having problems with carbonated drinks but like the taste, open them up and put them back in the frig for an hour or so. Or drink fountain sodas in the cafeteria rather than bottled. Less fizzieness. Or pour over ice and wait until the bubbles go away. Right after radiation, I found frasca, ginger ale, etc. tolerable. Experiment and see what works for you.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#57352 12-18-2005 06:47 AM | Joined: Nov 2005 Posts: 105 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2005 Posts: 105 | Thanks for the advice. I've basically tried "all of the above". I've been purchasing fruit nectar, such as peach, papaya, and strawberry. I put a few ounces of ginger ale in it and it really hits the spot.
John
SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
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#57353 12-21-2005 05:10 PM | Joined: Mar 2005 Posts: 35 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2005 Posts: 35 | I'm about 6 months out of radiation tx and I too have lost some taste.But like the others my smell sensitivity increased like a bionic nose. Spicy foods i have to watch for, cant even hardly handle certain bbq sauces. Saliva is 40% returned so I do use alot of water or pepsi when i eat. Steak and pork chops are hardest to swallow but yumm the fried chicken (thighs) is going down just fine. :-) | | |
#57354 12-25-2005 01:30 PM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | My ENT mentioned that "dry" food like steak would probably not taste all that good when all is said and done.
A friend who has been thru similiar treatment a couple of years ago reports that he cannot taste red wine.
Pete
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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#57355 12-26-2005 07:23 AM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | Peg tube users: Do you "taste" the foods you pour into your peg tube? Even though I can only vaguely taste anything by mouth, I can still get a very distinct sense of taste in the back of my throat when I pour food into my peg tube.
Said another way, I can only vaguely taste the strawberry Ensure when I swallow it, but I get a very distinct strawberry 'sensation' in the back of my throat when I pour that strawberry Ensure into my peg. Am I halluncinating this taste sensation? How can something poured directly into my stomach give me a taste in my throat??
Did my IMRT rewire me, or am I just strange? Tom
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#57356 12-26-2005 08:07 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Tom, well I'm strange too then. I get a slight sense of taste (not as strong as if I tasted it though) from what goes down my tube. I suspect it actually isn't taste from the taste buds but odor (which we sense as flavor when it's coming from the tongue area)
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#57357 12-30-2005 10:53 AM | Joined: Feb 2004 Posts: 43 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 43 | Tom, I am hoping to find a way to bring my ability to taste things properly. I own a restaurant and still like to cook. I can taste, but not to the degree I'd like to. If anyone has some advice, I'd appreciate it. I'm looking into Zinc Sulfate to see if it makes a difference. I'll let you know how I make out. Tom Roussell
SCC Tonsil Rt T3 N2b M0 side DX Jan 04 Tx 36 Rad 3 cisplatin Tx ending May 04. partial neck dissection july 04..... July 15,08 mets to liver Age 57...Did Methotrexate Sept 08. Now on a trial drug Panitumumab, Feb4,09 treatments stopped. going to Tibetan Medicine.
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#57358 01-15-2006 03:52 PM | Joined: Jan 2006 Posts: 1 Member | | Member
Joined: Jan 2006 Posts: 1 | Valentines day I will be 6 years from my diagnosis. I recieved 60 rounds of rad and Cisplatin chemo. I have taste loss that has not changed for 6 years, and the only time I produce much saliva is when I am in the dentist chair, it appears to be related to pain. I will givethezinc and accupuncture ideas a try!
Six years in remission from Stage 4 squamos cell of right tonsil. Chemo & Radiation
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#57359 01-16-2006 05:17 AM | Joined: Nov 2005 Posts: 79 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2005 Posts: 79 | Chris - i know this should be a new thread but it's wonderful to hear from someone who is a 6 yrs survivor of stage IV tonsil cancer. Welcome to the forum.
Mary
Caregiver for John SCC left tonsil Stage III/IV dx Sept 05, tx started Oct 21/05 -IMRT 35, cisplatin 3 X 100mg/m2;completed Dec08/05.
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