#57224 10-23-2005 04:07 PM | Joined: Oct 2005 Posts: 10 Member | OP  Member
Joined: Oct 2005 Posts: 10 | My Dad is 4 weeks post radiation of the neck and mouth. Has anyone had the side affect of perspiring all over ( dripping from his head) while eating a meal? He is completly frustrated with the continued blisters, burning mouth and now this. | | |
#57225 10-23-2005 04:58 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | If he is taking Pilocarpine, (Salagen) that can cause sweating. We also have heard from some folks that experienced this even when not taking Salagen. I have not heard if it resolved itself or not.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#57226 10-23-2005 05:30 PM | Joined: Oct 2005 Posts: 10 Member | | OP Member
Joined: Oct 2005 Posts: 10 | Thanks Mark for the quick response- I emailed my Dad your response . I am hoping your response will inspire him to begin his own dialogue with caring people like you.
Keep smiling
leslie | | |
#57227 10-23-2005 05:56 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Salagen has this effect on many. I tried it for a month and got tired of the amount of sweat it produced in me....all the time.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#57228 10-24-2005 01:07 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Leslie,
If he is taking pilocarpine and having this kind of reaction, I would have two questions: 1) what is his dosage, and 2) when is he taking it? I've been taking it steadily for about 15 years, and was in the clinical trials for it. In the early stages, they gave me varying doses, and for me a dose of 5mg 3 times a day was enough to help without causing a huge amount of sweating. The other thing that I found by trial and error was that I seemed to sweat less if I took it toward the end of a meal, rather than on an empty stomach.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#57229 10-24-2005 01:22 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Leslie, I think your Dad needs to see a doctor about this. It could be caused by any number of things, but it is important enough a symptom that he get some expert advice.
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#57230 10-24-2005 02:04 AM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | Your dad should call his doctor about this, but if he's taking Salagen he might want to ask about using Evoxac instead. Our ENT has switched all her patients to this newer drug (and she takes it herself due to her own radiation for HNC 18 years ago) -- she said it causes fewer of the negative side effects of Salagen and she thinks it is better for saliva as well.
Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#57231 10-24-2005 07:45 AM | Joined: Oct 2005 Posts: 10 Member | | OP Member
Joined: Oct 2005 Posts: 10 | Thank you for all the responses. My Dad is not on any medications. He is going to seehis doctor today. We will keep you posted.
Thanks | | |
#57232 11-03-2005 12:54 PM | Joined: Oct 2003 Posts: 18 Member | | Member
Joined: Oct 2003 Posts: 18 | leslie
i myself have the same problem of my head sweating if i eat anything with just mild spices in it, i have asked my ent and he says its just a side effect of the rad and chemo, im 3 years post treatment, and even now if i eat a burbon street steak then my head will sweat,but its ok cause i am able to eat the steak and im still here and kicking my heels high,my biggest problem is my tounge will go numb and turn white like as if the blood isnt flowing in it right, more so in cold weather, ent told me he thought it was muscel spasms go figuer. | | |
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