#55731 11-02-2004 10:32 AM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Hi everyone, hope you're all doing well. My mom has been experiencing some swelling, tingling and cramping in her feet. It's at a point where it keeps her awake at night. One doc suggested it could be related to Taxol, although she hasn't had Taxol in over a year. Does this make sense? Has anyone experienced anything similar? Thanks. Best regards.
D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#55732 11-03-2004 01:43 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Didier, I have a constant numbness/tingling in my feet. They also always feel cold, to the point of uncomfortable. Even in the heated waterbed they don't ever feel warm. I have not had any cramping or swelling, though. My oncologist also said it was due to my chemo, ciplatin in my case. He indicated it would go away in a couple of years, so we shall see. God bless you both.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#55733 11-03-2004 05:20 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Didier,
What you describe could be caused by many things among them, platinum based chemo, radiation affecting nerves through the neck, less mobility because of treatment and fatigue, dehydration, buildup of lactic acid from the liver trying to detox the effects of the chemo, poor circulation from the chemo/radiation/less mobility, thryoid, etc. Lack of excercise will cause muscles to deteriorate and cramp.
Keep your mother hydrated and check her blood work regularly until it is all normal. At a minimum, she should have blood work to include CBC, hepatic panel, TSH, electrolytes done at least once per month. She could also be taking calcium, B6 and B12 at doctor recommended dosages. The body is pretty beat up right now and normal nutrition alone probably wouldn't satisfy the body's need. I am sure she is not eating what she was before treatment which compounds the nutrition side a bit more. Have the doctors check the blood stuff first and then recommend a good healing regimen of vitamins.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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