#54857 05-17-2004 01:19 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Good Luck AzTarHeel,
As Brian stated the combo PET/CAT scan will pick up everything. My 1st scan showed activity in the surgical bed. They couldn't say what it was as it was my first pre=treatment scan. I am having the second scan this Wed. 5/19. They will be able to compare the two scans and give me a more accurate Dx. I am sending some good vibes your way. Hope all is well!!!!
Your Friend, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#54858 05-17-2004 05:40 PM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | AZTARHEEL:My first test results after rad/chemo came back with suspicious results. This 6 weeks after treatment. Went in and did the surgery and just got the report 3 days ago (Friday, 5/14). No cancer. Totally cancer free. Cured. Now, I could have spent that time between suspicious results and no cancer all worried, or doing what I normally do and wait for the final results. In neither case would the outcome have been any different. So don't worry. Let the results fall where they may and do what you have to do. Worrying won't change anything and you'll have to do whatever you need to do anyhow. My prayers go with you that the end result will be the same for you as for me. Cancer free.Regards, Kirk Georgia.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#54859 05-17-2004 07:36 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Thanks all, they told me it would be 24-48 hours before I know the results... arggg...
Actually, I'm prepared for about anything... I was pretty darn relaxed during the scan, thankfully... I actually shut my eyes for about 10 minutes and just zoned out...
I've heard enough about false positives so close to the end of treatments that this is in the back of my head if anything does come back suspicious...Will keep you posted when I hear the results... Thanks again for the prayers and "vibes"
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#54860 05-18-2004 05:50 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi Eric,
Don't get your expectations up - you may more disturbed after your scan for all of the reasons that Brian outlined. None of my MRI's gave me ANY piece of mind, actually exacerbating my fears. It all turned out to be NOTHING and I hope and pray that yours will as well.
Maybe this is why the NCCN guidelines don't recommend any post Tx scans except for an annual chest x-ray?!
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#54861 05-18-2004 08:46 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Eric,
I also would like to caution you about PET. PET is notorious for giving false positives and false negatives for cancer. It's a technology that I believe will get better like CT, but for now it's just a bit dicey. Try not to worry too much.
I rooting for you!!!
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#54862 05-19-2004 06:44 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | To those of you who warned me of "false positives" I am hoping that you are right...
I got my results back this morning, and there are two "small suspicious" areas... one in a lymph node in the area that was treated with radiation... the other on the other side near my right molar...
The doctor of course said not to panic, that it could be inflamation, an infection or something like else benign. But it's suspicious enough they want me to come back ASAP for an MRI, which they say will help them get a better picture...
So, as Brian predicted, my nerves are in shambles. But as so many others have said, "It ain't cancer till they say it's cancer." so I'm hanging my hat on that big time right now...
Will keep everyone posted as we go along... Once again glad that this board exists...
Peace,
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#54863 05-19-2004 07:06 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Eric-
Yep, it ain't cancer till they say it's cancer!! Keep looking up and know that there is one more out there praying for you and your shambled nerves!! With ya - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#54864 05-19-2004 07:32 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Eric
Think some of our treatment should involve a shrink.. to take care of all these overstreached nerves of ours.. try to stay positive..tell them ASAP means NOW.. keep us posted
prayers, love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#54865 05-19-2004 07:41 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Eric,
I had a "large suspicious area" in the same spot as the largest lymph node that was cancerous and the doctor even told me because it felt so hard he was pretty sure it would require a neck dissection and most likely indicated a recurrence. It went away on the next exam/scan. Please try and be positive and it ain't cancer till the pathologist proves it.
My thoughts and prayers are with you and if there was any way I could take the burden from you, I would.
Calmness and hugs your way.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#54866 05-19-2004 07:51 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Thanks everyone for the thoughtful and quick responses... I feel a lot calmer now than I did at first...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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