#54827 05-16-2004 05:03 PM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | OP  Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Hello all, tomorrow morning I have my first P.E.T. scan since I completed radiation in January. Wow, has it really been four months?
I originally had the test scheduled for July but my ENT said to go ahead and do it now "for my peace of mind." Well, right now I can tell you that my mind is OK but my stomach is in knots. I thought I was going to lose my lunch earlier today... And my wife is out of town... argg...
Like the day I originally found out I had cancer, this is a big benchmark. Either it's going to come back negative, and I'll continue the slow but upward healing process or it'll come back positive and... I don't even want to go there...
Here's hoping/praying I can stay completely still for 30 minutes straight tomorrow a.m... and that the results will come back positively negative...
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#54828 05-16-2004 09:44 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Good wishes are on thier way from me to you.. tell tham you need the results NOW.. I hate waiting for results..
Let us know as soon as possble
love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#54829 05-17-2004 04:21 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Thoughts and prayers for the news you want to here, "Cancer free"......
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#54830 05-17-2004 04:49 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | I hope the PET Scan comes back with good results for you, Helen. I would love to hear some good news from you very soon.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#54831 05-17-2004 06:17 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Hoping for good news.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#54832 05-17-2004 07:35 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I remember the tech scolding me because I coughed twice during the MRI and she had to start over. I was worried about choking to death on the dreaded brown strings of goo and she was worried about having to start over. I asked her if she was paid by the patient or by the hour. She didn't have a sense of humor, no surprise to me.
I hope the PET scan went well for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#54833 05-17-2004 07:38 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Remember that the PET will pick up lots of things besides cancer, specifically areas that are metabolizing sugars more than the rest of your body. Sometimes in areas where healing is taking place, especially so close to treatment as you are, you MIGHT show something positive there which is not cancer. This will of course need to be explored further, and will make your nerves and blood pressure numbers shambles. Hopefully they will give you a PET/CT fusion scan which is significantly more accurate than the PET alone. Best wishes for no surprises........
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#54834 05-17-2004 09:44 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | AzTarHeel,
Prayers are going up for you for great, negative results. I know how unsettling this time is for you...may God give you peace as you test and wait!
Take care,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#54835 05-17-2004 10:04 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | AzTarHeel,
Here's all my prayers for a negative scan. I'm sure everything will be just fine!
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#54836 05-17-2004 01:19 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Good Luck AzTarHeel,
As Brian stated the combo PET/CAT scan will pick up everything. My 1st scan showed activity in the surgical bed. They couldn't say what it was as it was my first pre=treatment scan. I am having the second scan this Wed. 5/19. They will be able to compare the two scans and give me a more accurate Dx. I am sending some good vibes your way. Hope all is well!!!!
Your Friend, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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