#53774 03-09-2006 09:48 AM | Joined: Feb 2006 Posts: 17 Member | OP  Member
Joined: Feb 2006 Posts: 17 | Hi everyone!
Has anyone taken the above which is an all-natural non-toxic extract(or so it claims) from mushroom?
Recently my sister(poor thing's having more nightmares then me about the disease coming back) got me these capsules from her doctor at a natural medicine centre,but i'm unsure as to take it or chuck it in the bin!
I researched it on the net & there have been long term(10 yrs) clinical trials which show significant immune system benefit.
Ofcourse it's not a cure but claims to enhance depressed immune systems,prolong duration of complete remission & survival,& benefits in nutritional or therapeutic health management plan.
I'm wondering about any possible side effects as i don't need them anymore....have had enough from the treatment!!!
I'd really appreciate someone sharing their experiences,if any from this product!
Thanks. | | | 
#53775 03-10-2006 12:13 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Is this the extract of the Japanese Mushroom MATAKE (Unsure of spelling) ma'-tak-eee.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#53776 03-10-2006 06:41 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I'd be curious what clinical trials you are speaking of. I have done a serach of medical databases and not found reference to any peer reviewed trials. If you have the source I'm curious.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#53777 03-11-2006 01:58 AM | Joined: Feb 2006 Posts: 17 Member | | OP Member
Joined: Feb 2006 Posts: 17 | Darrell...I don't think it's the matake mushroom(or whatever it's referred to) as haven't read anything about the coriolus versicolor linked to it.
Coriolus versicolor is the latin name & chinese is Yun Zhi(cloud mushroom),whereas Japanese is Kawaratake & it's commonly known as Turkey tail.
Brian...will try to locate the source & forward it to you. | | |
#53778 03-12-2006 12:16 AM | Joined: Feb 2006 Posts: 17 Member | | OP Member
Joined: Feb 2006 Posts: 17 | Brian.....I got the info on clinical trials from the source below: http://www.philsteinberg.com/byrec/22.html I'm unsure as to it's reliability & there's so much info on this product that it could drive one crazy especially if unfamiliar with the medical jargon!!!! | | |
#53779 03-12-2006 03:04 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Here's a link to him on Quackwatch http://www.quackwatch.org/04ConsumerEducation/Nonrecorg/aanc.html There's a lot of info but very little substance. There is hardly any real data in the so-called clinical trials.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#53780 03-28-2006 11:20 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Most clinical trials on these mushrooms were done in Japan and China. Try some searches in the PubMed database.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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