#53765 02-08-2006 12:20 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | I have a reoccurance mets to lymph nodes (SCC), in lower neck and chest. Surgical dissection very extensive and extremely difficult, really not an option. Tumor is wrapped around both the Carotid and subclavian arteries not to mention all the nerve bundles. Plus all this tissue has been radiated.
Today I was offered chemotherapy with drugs in clinical trials, Xeloda and oxyaliplatin. I don't have a clue who manufactures these drugs and that is unimportant anyway.
I begin my new chemotherapy next week.It should be an adventure.
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#53766 02-08-2006 02:35 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Darrell,
I haven't heard much on these two drugs but I do know that clinical trials are a great thing and can be live saving at times. How are you feeling? Are the areas of recurrence painful or non symptomatic? I'm praying for you and have added you to our prayer list at church.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#53767 02-09-2006 12:25 AM | Joined: Nov 2005 Posts: 79 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2005 Posts: 79 | Darrell- hope the new chemotherapy goes really well for you. Lots of good results and not too many nasty side effects. Thanks for keeping us posted on your treatment.
Mary
Caregiver for John SCC left tonsil Stage III/IV dx Sept 05, tx started Oct 21/05 -IMRT 35, cisplatin 3 X 100mg/m2;completed Dec08/05.
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#53768 02-09-2006 03:54 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | One of the reasons I opted not to have surgery was to maintain a quality of life for the time I have left here on the planet. No one but God knows the moment of our death so I could have days, months our years to hang around and annoy people.
If it is Gods will I will live, if not I will die, either way it is a win/win situation because of my faith in God.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#53769 02-09-2006 04:25 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Darrell, keep the faith and God Bless. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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