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#53726 09-10-2005 03:55 PM
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Jen, if I were you, I'd give my family a good swift kick in their collective butts laugh or better yet, just announce that you are headed for a spa for a month or so and "see y'all later". After I had a stroke, John did all the cooking, shopping and helped with household chores for 7 months while I was recovering.Sounds to me like they are spoiled rotten.I wish I could cook for you. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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#53727 09-19-2005 12:27 PM
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Could you come here too?

My husband is actually quite a good cook but has shown minimal interest in cooking stuff that might get me eating again. Instead he pretty much just cooks for himeslef and every week or so, he tries shoving pudding from the store at me. That hasn't worked so far so maybe he's jusyt given up and figures if I can't do pudding I can't do anything else. He does do the shopping. Houshold chores he does if he likes them (like laundry--no problem htough he won't fold things but vacuuming? Forget it) But basicaly he's really not cut out to be much of a caretake. What you lean about people can be disappointing when you go through cancer.


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#53728 10-21-2005 12:40 PM
Joined: Aug 2004
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This household has gone through its fair share of ice cream since discovering The Shake. Love the Buy One-Get One specials smile
Cindy, Tom's treatment finished up in December and he, too, can't seem to get the scale to register more than 150 lbs. He is eating MUCH better now (avoiding those things he knows will cause trouble), but he's been doing a lot of reading on "cancer-friendly" foods and those, of course, are the ones that could possibly add the weight. Cancers thrive in acid environments, and Ice Cream is one of the Most Acid foods available frown He's been trying to get around that, but we are kind of thinking the weight is the most important thing right now, for if he should get sick this winter, he just doesn't have any reserves on which to draw.
Larryb, PEACH has been a big favorite flavor this summer. Don't know to what flavor he'll be switching this season. Butter pecan is a good possibility!
He's busy tonight installing a new hot tub with a special 'neck blaster' jet which we are hoping will help him with the therapy/recovery in the neck and shoulders. He says he's so tired of feeling handicapped when all he wants to do is reach to the center of the dinner table for the salt (cancer cells don't like salt smile smile !
Enjoy life, everyone!
Nicki


Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
#53729 10-21-2005 04:37 PM
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JAM Offline
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Gee, I didn't know cancer cells don't like salt. and yuk, John is eating lots of icecream because he can't get past 145 lbs. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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#53730 10-22-2005 08:13 AM
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Nicki....where are you getting this information that cancer cells don't like salt ( and since it is a normal component of your blood as sodium, and other fluids in our body, what makes you think that eating it would have any impact) and this comment that cancers thrive in acid environments..... again, that ingestion of somethinjg like ice cream would creat a cancer friendly environment. I'm not sure you are getting good information from whatever the source is. It certainly doesn't match up to what the chemo prevention experts at some of the major cancer centers are looking at.

JAM has got the right idea, it isn't just about calories...it's about good nutrients that provide the vitamins, mineral, proteins etc, to heal properly, and stay in good health once there. You guys sound like you are going to survive cancer only to die of clogged arteries.....everything in moderation.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#53731 10-22-2005 10:38 AM
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Brian you are funny. Speaking of surviving and maybe a little off the ice cream topic....I recently made a similar comment to my spouse. He has developed terrible sleep apnea since radiation and chemo and now he has a machine to breathe with at night. He has had this machine for over a month but never really used it because he said it was too strong and he couldn't breathe. 2 days ago the company finally came and adjusted the machine so he can breathe with it. I have not been able to sleep with him because it is frightening. So the other night he finally used it. I was having trouble sleeping and went down for water around 3am. He assumed I wasn't coming back to bed and turned the machine off.

I told him that this was a life and death thing and I said it sure would be a terrible thing to survive cancer and die because you refused to use a machine.

As for the arteries, he eats mostly good foods and I am guessing that the mucleman stuff isn't really working but I am really at a loss of what to try next. Eating is still somewhat difficult and I suck as a cook so my menu is way too limited.

We will just keep plugging away I guess.

Cindy


Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
#53732 10-22-2005 04:04 PM
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Cindy, hey, we are off the island right now- in the real world so to speak-. Do you want some things to cook that Harry and the kids both might eat? Or do you want some suggestions of prepared foods that Harry could eat? Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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#53733 10-23-2005 04:50 AM
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Probably the former, Amy. See because I am domestically challenged I have enough trouble fixing meals for all of us. I dare not attempt separate meals for fear of starving everyone. haha but true.

if you have any ideas (other than pot pies!) I am open.

Thanks for asking.

Cindy


Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
#53734 10-23-2005 06:52 AM
Joined: Jul 2005
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Hi Cindy --

Your husband's DX sounds like my husband's (tonsil, base of tongue and 2 nodes) but they staged it "sort of between 3 and 4" not that it made a difference in treatment.

One fairly easy thing to make that everyone can eat, that uses all pre-prepared or canned stuff:

Cream of Crab soup: (very caloric)

1 pint canned or boxed chicken stock
1 14 oz. can sliced white potatoes
1/2 pound claw crab meat
1/2 onion chopped or use dried onion flakes
1 pint light cream
Seasoning -- salt and pepper in moderation, esp. if someone has a sore mouth. Have Old Bay Seasoning on side to add to non-sore-mouth bowls -- it is too "hot" for someone with radiation sores.

Put stock, canned potatoes (drained), onion or onion flakes in pot, heat to boiling then lower heat and simmer. When onion is soft, add crab meat. Simmer about 5 minutes, and at same time, break up crab meat with spoon into smallish bits. Add pint of cream, stir, bring back to almost a boil, remove from heat. Soup is best if left for flavors to "merge" overnight and then reheated, but can be eaten immediately.

If someone is having a problem with swallowing solid lumps, puree soup in blender. It then becomes a lovely crab bisque!

This recipe can be used with shrimp, clams or a white-meat fish to make cream of shrimp soup or fish or clam chowder.

Gail


CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
#53735 10-23-2005 07:08 AM
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Gail,

That sounds delicious. I'll have to try it myself!


Mucoepidermoid carcinoma-intermediate grade. Removed 3/05. Additional surgery to get clean margins and selective neck dissection 4/05. 30 lymph nodes removed. All clear!!
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