#53484 01-29-2005 04:11 PM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) |  Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Haven't been around much, trying to prepare house and self for eventual move to Florida, but was surprised today to see this thread revived. My doctor finally talked me into revising my scar and did it yesterday. I look Frankensteinish, but no, he didn't send the piece he removed to pathology for cancer of the penis check!  Helen, much love to you and same to you Minnie. What surgery do you have coming up? Teeth? Sincerely, Lisa almost 2 years survivor!
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#53485 01-29-2005 05:44 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Lisa,
I'm having scar revision and also having some tissue re-arranged under my jaw and chin and having the part of my bottom lip that has no feeling built up as it has sunk a bit since surgery. Implants begin after I heal from all this. My neck disection scar has caused alot of tethering in my neck, it's visable to anyone who looks. I am excited that this will loosen up my neck some.
How are you feeling? I do not have to stay overnight and the surgery is estimated to last about 4 hours.
Glad to hear from you!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#53486 01-30-2005 03:29 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Minnie, that is awesome you are having the scar revision done. I have to get some reconstructive surgery done on my flap soon, it is lifting a bit, no big deal, they will sew it back down. Definitely gonna ask about the scar revision, too. My neck sounds a lot like yours. God Bless, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#53487 02-21-2005 01:32 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi all, I love humor as much as any one. Helps the hot flashes that I have too. Yes, I'm going through the change too UGH!!!!! Have a good one.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#53488 02-21-2005 03:26 PM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | This is such a wonderful post. I have always believed that humor is the best medicine.
But my husband is not one who will take the humor for what it is. He was dehydrated this weekend and I took him to the hospital to get juiced up. They also loaded him with nausea meds that make him a bit loofy. He was in the middle of telling me some story about some lady and her cats, which I did not understand, and suddenly fell asleep. I wanted to laugh because I thought it was cute but if I had he would have hit the roof.
So I laughed quietly inside as I walked out of the room to let him sleep.
I so wish that he could laugh the way you all do. Every little thing from drooling to suppositories, from which I could find an enormous amount of humor, only makes him angry.
Thanks for sharing your humor. It certainly helps to see that there are others who are riding the wave without forgetting how to smile.
Oh how I wish that humor lived here in my house.
Ironically, my husband has an incredibly beautiful smile. I just wish I could see it more.
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#53489 02-22-2005 06:51 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | HI Cindy, I'm sorry for you at least you have us
to laugh with.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#53490 02-22-2005 11:39 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi All
have just been back through all the posts here, I wonder what the newcomers make of it all, to me that fact that I can look back almost a year and still laugh is fantastic. I have to say that there are many who cannot, so I hope they are watching from heaven..
may all our gods watch over us all..
Sunshine...love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#53491 02-27-2005 10:09 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | They say that laughing releases some sort of endorphines that help relieve pain. At least it helps keep us sane.
New definition of irony. There's a website in the town I live in in China that's geared toward letting the expatriate community know what's going on, where to go, where to eat, etc.
They've asked me, the guy who's had a chunk of tongue cut out then had the remainder nuked, to write the restaurant reviews.
Think about it....
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#53492 02-28-2005 03:19 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Bob, after reading many manuals translated maybe it is your writing skills they are after. Even if your review is wrong at least I could understand it.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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