#53464 06-02-2004 04:47 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Lisa
Thanks for sharing... I personally needed the laugh.. I thought I was having some wierd dreams... But lady.. that takes some beating...
prayers... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#53465 06-02-2004 11:16 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Freud would love to spend a few hours with you, Lisa! :p
I have had some wierd but not so funny dreams with people that have passed away coming to me in my dreams. In one case, I asked someone for a picture of a person that passed away that I have never met and it was him. I knew it was when I woke up and emailed them. It made the hair stand up on the back of my neck.
It sounds like you have a classic case of penis cancer envy! Good thing it wasn't testicular cancer. That would be double trouble!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#53466 06-02-2004 11:19 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Lisa
Thank the lord for a sense of humour...I laughed out loud.I hope your dream didn`t scare you, maybe you should share it with your Doc!
keep your chin up.
Cheers Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#53467 06-02-2004 04:40 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Dang, Lisa! That was quite a dream. I loved the cheerleader comparison, haha.
Take care and let us know if this dream has a sequel!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#53468 06-02-2004 06:53 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Ok, while were at weird stories, just to show again that you can't fully trust medical technology.
My wife and I have been trying to "get pregnant" for the past several months, without much success. So, this month started with the ovulation predictors a few days early. Sure enough started with the 2 lines earlier than what we though was normal.
5 days later, she's still getting 2 lines on the test, which we though was not normal, so just for fun, I did one of the ovulation tests.
According to the tests, I was ovulating also!!
NO wire hangers,, ever.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#53469 06-03-2004 09:01 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Bob, Just keep practicing... Ed 
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#53470 06-10-2004 10:50 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | ok all
Now I'm getting a tan.. yep I know i could get skin cancer but I figure what the hell.. but question.. if my arm is brown when they take the graft.. do I have to stick my tongue out every time the sun shines...
sunshine love and hugs..(don't take me me to serious)
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#53471 06-10-2004 07:14 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Only if you want it tanned, silly. I hope you are doing well...been thinking about you. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#53472 01-03-2005 10:23 AM | Joined: Jan 2005 Posts: 94 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2005 Posts: 94 | After my first surgery, I had 7 weeks of radiation. Not funny. After a few weeks, I started having problems... a wound that wouldn't heal, bumps where there shouldn't be bumps. Apparently, I had a few loose screws (on the titanium splint they used to hold the fibular graft in place where they removed part of my mandible). My twisted friends thought this was hilarious. So did I. We all needed a laugh.
I was just bummed that they had to remove the titanium. Until then, my nephew thought I's become some kind of secret super hero. "Titanium Man!" Oh, well.
I figure we can laugh, or we can cry. I choose to laugh.
Ken
SCCA T2N1M0 diagnosed 11/02, radical neck dissection, 7 weeks radiation, 6 surgeries to deal with osteonecrosis, 10 weeks hyperbaric oxygen. "Live strong. Laugh often."
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#53473 01-26-2005 11:56 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Ok All
this is me the bloody English idiot on the forum, now as most of you know humour is MY biggest defence, so need good vibes and prayers for the 10th of Feb, when I go to the ENT to see if they can open up my Trachea which the trachie has narrowed, I can't laugh, or talk for long, carry heavy bags, everthing is an effort, NO-ONE said anything about this as a side effect of surgery. OH well have another red wine all look fine tomorrow!!!
Sunshine.. love and Hugs (no laughing)
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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