#53201 03-03-2007 02:48 PM | Joined: Dec 2006 Posts: 21 Member | OP  Member
Joined: Dec 2006 Posts: 21 | I AM HAVING SURGERY IN NEW YORK CITY AT SLOAN KETTERING NEXT MONTH FOR TONGUE CANCER. THE HOSPITAL IS ABOUT 150 MILES FROM MY HOME AND MY WIFE WOULD LIKE TO BE NEARBY AS I AM EXPECTED TO BE HOSPITALIZED FOR 7 TO 10 DAYS.
THE CHEAPEST HOTEL WE COULD FIND IN THE VICINITY OF THE HOSPITAL WILL COST US $229 PER NIGHT. THERE IS NO WAY WE CAN AFFORD THIS. THINGS ARE ALREADY TIGHT SINCE I HAVE MISSED SO MUCH WORK TRAVELLING BACK AND FORTH TO NYC FOR DOCTOR'S APPOINTMENTS.
ARE THERE ANY AGENCIES OR ASSISTANCE PROGRAMS THAT MIGHT BE ABLE TO HELP US OUT WITH FINANCIAL ASSISTANCE FOR A WEEK AT A HOTEL FOR PATIENT'S FAMILY MEMBERS?
Tongue cancer diagnosed 12/01. Tumor removed. No chemo, no radiation. Early stage 3 SCC of the tongue recurrance 12/06, well differentiated. Hemiglossectomy, free flap, neck dissection 3/26/07. IMRT Tx finished 8-7-07(30 Tx's). No chemo.
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#53202 03-03-2007 03:24 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Have you spoken with the social worker at MSKCCC? Some CCC's have housing units available for families. See http://www.mskcc.org/mskcc/html/5364.cfm
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#53203 03-03-2007 03:39 PM | Joined: Dec 2006 Posts: 21 Member | | OP Member
Joined: Dec 2006 Posts: 21 | I was given a printout of the link you provided by MSKCC rep. that was the only assistance I was offered.
Tongue cancer diagnosed 12/01. Tumor removed. No chemo, no radiation. Early stage 3 SCC of the tongue recurrance 12/06, well differentiated. Hemiglossectomy, free flap, neck dissection 3/26/07. IMRT Tx finished 8-7-07(30 Tx's). No chemo.
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#53204 03-03-2007 04:10 PM | Joined: Sep 2006 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2006 Posts: 42 | Check with the American Cancer Society - they have Hope Lodges near hospitals where patients and caregivers can stay for free - the one in Baltimore is fabulous - patients at Univ of MD Hospital and Johns Hopkins stay there. Shuttles provided back and forth to the hospital. A hotel atmosphere - but warm and inviting and everything you need. Information on the American Cancer Society website.
MARTY-Caregiver to husband (non-smoker/non-drinker)Dx 04/06 SCC Stage IV left tonsil-3 lymph nodes,HPV+,Tx 35xIMRT,35xcisplatin/tarceva,neck dissection 11/06, beginning HPV vaccine JHopkins 04/07.
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#53205 03-03-2007 04:13 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | If you can't get hooked up with a hospital housing unit,investigate Bed & Breakfast Homes. I stayed in a charming old apartment B&B [albeit 15 yrs. ago] close to 5th Ave. for $50.00 a night and rode the subway everywhere I wanted to go. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#53206 03-03-2007 04:15 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | By the way, I believe David has verified that out of town expenses for a family member during a hospital stay is tax deductible. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#53207 03-31-2007 05:24 AM | Joined: Mar 2003 Posts: 16 Member | | Member
Joined: Mar 2003 Posts: 16 | HI Keplin, another suggestion, go to www.craigslist.com, and go to NYC, http://newyork.craigslist.org/vac/ check this link several times a day as listings change. email the people, tell them what you need, ask for help, somone will help. good luck. you might also ask the social worker at sloan for help, shes a great lady. cant recall her name right now though, but just ask for a social worker and they will provide. good luck, therese | | |
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