#51503 04-21-2006 10:44 AM | Joined: Jan 2006 Posts: 2 Member | OP  Member
Joined: Jan 2006 Posts: 2 | Hi, I'm new, so not sure if this is the right place to ask. This is a great website and fantastic resource, I'm in the UK and I can't find anything like it locally. My dad was diagnosed with tongue cancer in Fall 1993 and treated with Radio and Chemo therapy but no surgery - for all those of you fighting cancer now take faith that it is over 12 years on and he is cancer free - but the downside (apart from his constant water glass with his gunky salvia on!) is his jaw is in such a terrible state that he is due to have jaw replacement surgery. He is on antibiotics pretty much all the time now and since Feb this year has had continuous abcesses. We know that they will take bone and possibly blood and muscle from one of his legs but no more than that....does anyone have any experience of this? | | |
#51504 04-21-2006 11:44 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Cancer free is good news. It is my personal prayer that this upcoming surgery will cure all his problems.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#51505 04-21-2006 04:35 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | This surgery is somewhat common, and we have posters here ( who I hope will speak from their own experiences to discuss this with you in detail) that have had it done very sucessfully. A combination of autogenous grafts of your own bone, held in place with titanium plating, is capable of an anatomically correct restoration. The TMJ's are usually not affected in these surgeries, and remain the patient's own joints.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#51506 04-22-2006 09:29 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Cat, I had the surgery to replace half of my lower jaw. It was a difficult surgery but VERY doable and I came through it quite well. My jaw is stiffer on that side, but it still moves well and I have no issues with opening my mouth, etc. The bone from my leg was used, along with some tissue, arteries, etc. Let me know if you have any questions. Here is a picture of me from December that shows the surgery is not deforming. [img] http://i13.photobucket.com/albums/a276/minnieashworth/summer2005andChristmas2005772.jpg[/img]
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#51507 04-23-2006 08:53 AM | Joined: Jan 2006 Posts: 2 Member | | OP Member
Joined: Jan 2006 Posts: 2 | Thanks to everyone for their responses, Minniea - the photo looks great! If you don't mind I'll probably email you direct, I'm sure I have loads of questions once I sort them all out. Since the weekend Dad's jaw is now really bad and he's back on a liquidised diet since he can't move his jaw at all. We see his consultant in a couple of days and will find out then how fast they plan to move.
Cat | | |
#51508 04-23-2006 10:58 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Minnie, that's a nice picture. It's nice to know what you look like! Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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