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#51318 10-19-2005 02:34 PM
Joined: Sep 2005
Posts: 36
Leze Offline OP
Contributing Member (25+ posts)
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Joined: Sep 2005
Posts: 36
Sorry I haven't been around in a while. A lot has happened in the last few days and its not all good.

Sunday night as we were watching TV, Scott's tongue started bleeding uncontrollably and I had to call 911. We were taken to a local hospital and they were no help. They just stuffed Scott's mouth with gauze so he can pressure on it and after 4 hrs of doing so they sent us home.

Withing 45 minutes of being home, I had to call 911 againas he started bleeding even more than the first time. So much so that scott blacked out and lost consciousness for a few seconds that seemed like an eternity.

This time we were taken to another hospital where they did so much more to help him. They immediately contacted his ENT and arranged to have him transported to another hospital where he can be seen by his cancer doctors as this was out of her range of knowledge (at least she was honest).

At 6:30am he was transported to USC and we saw his Dr's shortly after. 6 or 7 Dr's have seen him and not one has been able to tell us where the bleeding derived from.

The radiation oncologist saw him this morning and discovered a lump behind his throat but they are not sure if its cancer or something else.

We will start radiation treatment tomorrow. Scott was able to do his first simulation yesterday, they will do the 2nd phase tomorrow and do some manual rads as they don't yet have the plans.

Thanks for all your support and sorry if I have not responded to your posts but I know you understand.


wife to 36 yr old husband diagnosed with SCC on 7/6/05, tongue dissection and radical neck dissection on 7/15/05, 2nd biopsy on 9/15/05 and found carcinoma in-situ. Starting radiation and chemo on Oct 05
#51319 10-19-2005 03:04 PM
Joined: Apr 2005
Posts: 2,676
JAM Offline
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Joined: Apr 2005
Posts: 2,676
Leze, what a scarey time you and Scott had. Hope things go easier over the coming weeks. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#51320 10-19-2005 03:52 PM
Joined: May 2003
Posts: 928
"Above & Beyond" Member (500+ posts)
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Posts: 928
Leze
I don`t know how I managed to miss your posts but I did .
I am so sorry you and Scott are having such a rough go of it, hopefully his Doc`s have a handle on things now.
When you can, let us know how things are going for you both.
Take Care
Marica


Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
#51321 10-19-2005 06:39 PM
Joined: Sep 2005
Posts: 36
Leze Offline OP
Contributing Member (25+ posts)
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Joined: Sep 2005
Posts: 36
I don't understand why things keep getting so complicated for us.

It has been one thing after another and it just doesn't end.

I really hope that the radiation and chemo work right away. If it doesn't work then I don't know what else we can do.

Please keep us in your thoughts and prayers.


wife to 36 yr old husband diagnosed with SCC on 7/6/05, tongue dissection and radical neck dissection on 7/15/05, 2nd biopsy on 9/15/05 and found carcinoma in-situ. Starting radiation and chemo on Oct 05
#51322 11-15-2005 05:33 AM
Joined: Jul 2005
Posts: 28
dee Offline
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Joined: Jul 2005
Posts: 28
Lily,
I hope all is ok with Scott and you.
I completely understand your anger and fears.
When my Mom had her peg tube placed, I was scared to death but also happy that I could help assure she recieved the nutrition she would need to fight.

We used the gravity style and boost high protein per doctors orders. At one point, her tube came out and I freaked cause I knew this was the only way she could "eat". It was immediatly replaced. I found that forcing the boost through (plunging/syringe) wasn't good for HER. it was too much too quick. At one point, we were putting in 2 cans 4x a day to get her weight built up.

Mom also held the right side of her head all the time due to the pain being so great. I was constantly insisting on getting her pain managed.

As Danny Boy pointed out, depression (and nerves) also can come into play on all this too, for BOTH of you. So PLEASE take good care of yourself as well.

This is a very harsh diesease and treatment.

My Mother and I always would start and end the day with a Kiss and an "I Love You" for we did not know what the next day would bring.

Hang in there and take care!
dee


Caretaker of Mom with Unresectable stage IV SCCHN, T1-3,T4..No,N1,N2-3. IMRT daily treatment starting 8/24/05. Erbitux every week starting 8/10/05 and Cisplantin every 3 weeks times 3. Diagnoised 7/5/05 -passed and in peace now on 10/1/05
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