#51026 12-03-2004 12:53 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I had a conversation with someone from the NCI today and a little gem of a statement just came out in the conversation that I thought I would pass along in respect to recurrence, and the psychological aspects of survivorship. It was this.... After treatment you may be declared cancer-free, but that does not mean you are free of your cancer......... I was trying to explain the issues of survivorship.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#51027 12-03-2004 02:06 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | After having some members pass on can be a shock to some people. When Lynn passed I was shocked. I had no idea she was that ill. I would have liked to email her more often than I did. Christine was kind enough to private email me with Scotts final couple of weeks. It would move anyone. As I continue to travel down this bumpy road I want to share my experiences with all my family on the OCF Website. I often wonder what it will be like if the chemo stops working. It's human nature to wonder about this.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#51028 12-05-2004 12:34 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Danny ...you would have to be made of iron not to wonder about this. We are all in our own little world of denial but, for now the chemo is doing its job. Yeahhhh, all we need is time for someone to come up with that magic bullet. For now, I know I want to know how you are coping , it is so very generous of you to share your journey with us.
Take care Danny
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#51029 12-05-2004 01:43 PM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | Danny,
you keep on going.
cu,
larryb | | |
#51030 12-09-2004 02:14 PM | Joined: Jan 2003 Posts: 95 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2003 Posts: 95 | Danny,
Hang in there and hang the biggest star from your christmas tree this year . You deserve it. Diane | | |
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