#50970 10-22-2004 10:18 AM | Joined: Apr 2004 Posts: 44 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 44 | I don't really want to expound too much because my Uptown reads these posts, but there are some things possibly going on with his wellness and I'd really appreciate it if you folks will pray or do whatever your religious belief encourages while we "hurry up and wait" to see if the stuff happening is just stuff happening or if the shoe's about to drop. I've decided that it isn't inappropriate for me to say I'm an emotional weakling right now. I almost got used to things being okay and stuff started looking up...possibility of job, scholarship(ish) to go to school... I love that silly goose so much I can't imagine the what if...  Thanks for just being there to encourage us all and to have a safe place to admit you're scared without being ridiculed. Yes, I know worry doesn't change a thing but prayer sure does! Susan
Caregiver to Uptown/Ed, SCC Stage IV, Base of tongue - Completed Chemo (Cisplatnin/5FU) and 45 days' simultaneous Radiation 10/08/03
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#50971 10-22-2004 10:34 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Susan
We all know the fear you are dealing with...and you are no wimp girl. We would be silly not to worry, even though we tell each other not to!
That hubby of yours is such a generous guy with his time, and, always goes out of his way to try and answer any and all questions on the board.
He is in our prayers, Big Time!
Much love to you both
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#50972 10-22-2004 10:59 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Susan, praying is one of the things we do real well here. We all have lots of practice at it for the whole board as well as for our own issues. Of course we will continue praying. I will add you to the list also as I'm sure the love is returned and you need His strength as well. Whatever the issues, just remember it isn't anything til the pathologist says it is. And if it is, you'll both deal with it as you need to. And we will be here to help you get through it. God bless you both.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#50973 10-22-2004 01:56 PM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Dear Susan,
There are so many wonderful people who need help and many Angels who help others that are found on this site & I believe we are guided to each other when we need to be in touch.
I and my family will pray for you & yours.
Take care
Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#50974 10-22-2004 04:12 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Susan, I'm not a particularly "prayerful" person, but I sure will be sending positive energy, good vibes, rainbows, pom-poms and anything else you want to call it.......to both you and Ed. You are both such special people. Do your worrying now and get it out of the way, because we all know this is a false alarm. All is fine and will continue to stay that way. Quite simply, the forum can't afford to lose you guys and your valuable input, so you are both here to stay! We're not giving you any other choice!!!  Seriously, I fervently hope this stuff is just stuff, but you are entitled to worry and fret all you want. It's just the nature of the beast and you're not getting brownie points for being strong and stoic, so use our collective OCF shoulders to lean on as much as you want. Rainbows & all that other good stuff winging its way to you both,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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#50975 10-22-2004 04:46 PM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Susan, you have got it, no need to place the order for you are all on prayer lists all over this great land of ours. You are in mine all thru out the day and night. I am a believer in GOD and of the prayer, just because you don't see them, doesn't mean they aren't answered. Gosd Bless you both,, and you are not a WHIMP, honey look at what WE ALL have been thru. If anything we are STRONG as HELL. There are so many that couldn't handle all this...WE are all very very SPECIAL PEOPLE...I BELIEVE THIS AND SO SHOULD YOU,,always Miss Vicki | | |
#50976 10-22-2004 04:54 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Susan, please read below and read it each night until they tell us that Ed is just fine.
I am in a hurricane right now.
I've been here before.
And I survived.
I am not alone.
God is with me.
My faith sustains me.
It has never failed me.
I'll come through this.
I am strong.
I am loved.
This too will pass
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#50977 10-22-2004 05:52 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Susan,
Ed's a great guy. He's definitly in my thoughts, as are you. You are by no means an emotional weakling. Ed is lucky to have you. All of my best wishes to both of you.
D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#50978 10-22-2004 05:54 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Susan,
I really think that this diesese has all of paranoid of every little thing that changes. I am here for both of you and I love you both dearly. My prayers are with you.....
Big Hugs,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#50979 10-22-2004 09:49 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Susan
Wimp, no way girl.. no-one on this forum would ever think that, and yep we all can turn worrying into a world championship event..
So prayers, good vibes, and lots of hugs to you both..
love and stay in the sunshine..
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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