#50081 08-02-2006 10:41 AM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | I just saw the latest OCF news release on the national news wire -- hope it garners the whole oral cancer issue (and this group) some valuable publicity. Here's what it said: NEWPORT BEACH, Calif., Aug. 2 /U.S. Newswire/ -- If you are one of the more than 300,000 people worldwide affected by oral cancer each year, http://www.oralcancer.org could be your new best friend. At http://www.oralcancer.org patients, caregivers, and health care professionals alike are finding answers, support, and new allies in their struggle against this deadly disease. The web has changed our world in many ways, but one of the most positive examples is the ability for oral cancer patients to connect with others who are fighting the same battle, or with survivors who have been down this difficult road ahead of them. Through real time exchanges of experience and knowledge on The Oral Cancer Foundation
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#50082 08-02-2006 03:30 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | That is really impressive!
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#50083 08-02-2006 07:54 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | There is a prime time TV ad running in Australia at present linking mouth and throat cancer with smoking. It is a very graphic advert and the graphics will be repeated on cigarette packets. http://www.cancerinstitute.org.au/cancer_inst/campaigns/healthwarnings2006.html Helen
RHTonsil SCC Stage IV tx completed May 03
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#50084 09-03-2006 05:25 AM | Joined: Aug 2006 Posts: 12 Member | | Member
Joined: Aug 2006 Posts: 12 | This is wonderful. I actually found this site due to Eyewitness news Channel 7 in NY. They had Oral Cancer as a subject, and referred to this site in their website. Bravo!! Word is getting out. This site has been so helpful to me. Thank you all, And God Bless you all.
You are in my thoughts and prayers.
Nanci
*******************
SCC - Early detection. 1/4 of Tongue Removed, left side. Following carefully.
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#50085 09-03-2006 11:40 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | One small success at a time.... never fast enough, never with enough money to accomplish the goals that we have. But we will keep chipping away at this disease with the resources that we have available, we will not give up hope of progress, we will use every resource we can find.... hopefully finding allies along the way and strategic partners that will help us reach our goal of reducing the death rate. Even knowing the path to success, we are trapped in small steps until more people become aware, assist the cause, and share our values with us.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50086 09-03-2006 03:57 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Leslie,
Thanks for posting the link. I had not seen it yet.
Helen,
We will NEVER see anything like this in the US with the tobacco lobby what it is here. What a shame!
That's a great campaign. It is bound to be successful.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50087 09-07-2006 01:09 PM | Joined: May 2003 Posts: 102 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2003 Posts: 102 | That piece was so well worded.
Despite the fact that I am angry and disappointed in my Aunt's prognosis, no- let me change that to: BECAUSE I am angry and disappointed in my Aunt's prognosis because of her inability to use the facts and information wisely, face the truth and become pro-active for herself; I will continue to spread the word and the information on this website that I have been visiting everyday for the past 3 1/2 yrs.
It has been an honor to know all of you fine people and be involved with such an important cause. Please keep fighting everyone!!
Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node. AdenoC 1 sal gland. Two add. reconstrc. surgeries for adhesions. Recurrence 7/06- Sub-Mand AdenoC. Mets to both lungs. Lost her battle 5/4/07.
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#50088 09-07-2006 02:30 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Lisa your post sounds like you will be moving on from OCF. I hope that is not the case. You have so much to offer others coming down the path behind you. 3.5 years is a lot of experience, a lot of first hand knowledge. Caregivers, and relatives are just as much a part of the equasion as the patient. Hope we to continue to see you here.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50089 09-07-2006 03:43 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Lisa,
I had the same reaction as Brian to your post. I hope that we misread your post and that you will continue to be an active member of this forum.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50090 09-08-2006 02:45 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Lisa, please continue to post, we need you here! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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