#50031 04-26-2006 04:57 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | The last two weeks have seen Blythe on a public media junket for awareness and early detection with OCF as her non-profit partner. Today she did the Good Morning America Show, tonight she was on ET/Insider, she has had lots of print pieces appear in the last two weeks, with ABC giving us small regular spots calling for people to watch the interviews, and there are also new print pieces coming out. I interviewed with In Style who wishes to cover an upcoming event with her and OCF, and she did an interview soon to appear in Woman's Day, a magazine which has been very good to us in the past with an article entitled "My Dentist Saved My Life" which appeared last year. With the loss of her husband now several years past, she has been courageously more vocal about the lack of early detection in his death from oral cancer and has begun to speak out. Sophisticated and articulate, we could not have partnered with a better celebrity to bring attention to OCF, the disease, and early detection. We are clearly in her debt. At a time when her workload is at a lifetime high, she has made time to engage in this project, and we cannot thank her enough. If anyone wishes to communicate their thanks to her for helping OCF in this manner, please forward any communications to me, and I will see that she gets them in the next few weeks. Frequently it is difficult for people in her position to know that what they are doing has positive impact. Hearing from a bunch of you would go far in helping this relationship continue and grow.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#50032 04-26-2006 05:50 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Well isn't that a trip! Blythe Danner is one of my wife and I favorites on "Huff". She's a great actress. Very cool! Just watch an episode of "Huff" (Showtime - Sunday night) and you will see just how sophisticated and articulate she is (and that's only her character - I can only imagine what she's like in real life. She steals the show every week.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#50033 04-26-2006 06:13 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Miss Danner We send you our sincerest condolences on the loss of your husband. We truly appreciate that you are taking time out of a very tight schedule to promote our cause. Maybe if we can get the word out to enough people we will see a decrease in the number of folks affected by this disease. You are a very brave lady, to even consider dragging up the pain you have been through to help others.
Please accept our deepest and most sincere thanks
Marica and Pete evans
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#50034 04-27-2006 10:35 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Dear Miss Danner,
I was thrilled to hear from Brian Hill that you have become a vocal advocate for "early detection". Your work with Brian and the Oral Cancer Foundation" will leave us indebted to you forever. We appreciate so much that you have been able to spend time helping "our" cause when you are obviously so busy providing so much enjoyment to your loyal fans.
As an aside, many years ago a very dear friend of mine told me that he was related to your husband Bruce. It is a distant relationship as his mother was Bruce's second cousin. Her maiden name was Lee Harrison.
Thank you again, from the bottom of my heart. This is such a worthwhile organization and it will now be that much stronger with your generous help.
Jerold B. Wilck DDS
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#50035 04-27-2006 10:56 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Ms. Danner, I would like to thank you for helping us. Oral cancer is such a horrible cancer and we can use so much help to get the word out! I am very sorry about your husband, May God Bless You, Carol Layer p.s. I just watched "Meet the Parents" for probably the 20th time, you are great in it, what a funny movie! I have enjoyed your performances in many, many movies. I also caught you in a "Columbo" episode, it was awesome.
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#50036 04-27-2006 11:18 AM | Joined: Mar 2006 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2006 Posts: 58 | Ms Danner, Thank you so much for giving so much of your time to this cause. God Bless you. Angela White
Caregiver to husband David, non smoker. Dx 1/06 SCC Base of Tongue Stage IV, neck nodes involved. Surgery/Chemo/Rad. Treatment finished 5/06. Waiting. Recurrence in lung, Aug07. 6 months Cisplatin/Erbitux. Spots shrinking after 3 Cisplatin tx.
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#50037 04-27-2006 02:03 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | Thanks, to Ms Danner. Public awarenees is what it's all about and what better way?..... Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#50038 04-27-2006 02:28 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Ms.Danner, I am caregiver to my husband, who has a recurant mouth cancer, and I want to thank you from the bottom of my heart for taking on the challange of spreading the word about this disease and the importance of early detection. Your help will no doubt save many lives. Amy Myren
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#50039 04-27-2006 02:32 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | Please see this weeks People Magazine. Ms. Danner has a two page story about her husband's death, oral cancer, and early detection. OCF is the link mentioned in the bottom of the article for additional information. Powerful story, powerful medium to get the word out.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#50040 04-28-2006 02:56 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Dear Miss Danner,
I was diagnosed in April of 2003 and of course death was a reality for me. My biggest concerns and worries were for my children, how they would handle losing me. Reading your husband's story helped me enormously as it was evident that you both had a close relationship with your children, as do my husband and myself. Everytime I see a picture of your daughter, Gwenyth, in the papers (which is quite often!), and it shows her as such a happy and content person, I feel relief. She has ceased to be a movie star to me and has become a shining example of how well our children can cope with losing us, so it puts my fears to rest. Thank you for sharing your story with the world, it helps far more then you realize. Minnie Ashworth
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#50041 04-30-2006 02:36 AM | Joined: Jul 2005 Posts: 54 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jul 2005 Posts: 54 | Dear Ms. Danner, I, too, am grateful that you are helping those with oral cancer and their families. So often I hear from others that assume this cancer is not as serious as others because they have not heard about it or they assume it is easily managed because it is in the mouth/throat. Reading the stories of both those that survive and those that die on this forum opens eyes. For those that are living with the disease and receiving surgery, chemo and radiation, the treatment phase stories shared are what keep many going with hope they can survive the aggressive treatment. Thank you for sharing your experience and concern for all of us touched by this disease. Peace, Janet
Caregiver, Husband diagnosed 7/6/05 SCC left tonsil, T2N2bM0, Concurrent chemo/radiation begun 8/2/05 (Cisplatin). Received 2 cycles cisplatin, 38 radiation treatments. Completed course 9/27/05.
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#50042 04-30-2006 03:51 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Dear Ms Danner, I want to thank you so much for your help with this cause and this web site. Having undergone radiation 9 years ago with no support group in site, I cannot tell you how much this web site would have meant to me. Doing this is no fun, doing this alone without help can be a nightmare for all concerned.
I have also listened to the inane comments of my fellow workers who know have I have this disease twice state stupid things like 'I don't have to worry about ever having oral cancer. I never smoked'. When I carefully point out to them that 25% of all oral cancers are in patients that have not smoked and that they are the ones who are likely to ignore the symptoms and therefore wind up as a stage four, they are amazed.
I am extremely sorry you had to experience this personally and again thank you for taking the time to get the word out that early detection saves lives. Maybe if someone figures out it is not just smokers who get this disease, some more money might be spent on finding a better cure.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#50043 05-05-2006 08:11 AM | Joined: Jul 2005 Posts: 1 Member | Member Joined: Jul 2005 Posts: 1 | Dear Ms. Danner, Thanks so much for acting as a spokesperson for OCF. This is a wonderful organization and the website was extremely helpful to me during a very stressful time. My son David was diagnosed with stage III tongue cancer in June of 2005. He is 28 years old and had surgery to have over half his tongue resected this past December. He is currently doing quite well and progressing every day. This disease is especially tough on young adults who don't always have health insurance, don't often visit dentists and just tend to ignore bumps under the tongue or sores in the mouth until something actually hurts. I also believe there could be a link between HPV and oral cancer and this isn't talked about enough. I know your speaking out about this devastating disease will bring much needed awareness to many and help get the message out there regarding the importance of early detection. My sincerest sympathy goes out to you on the loss of your husband. Your stage and screen work has been a joy to watch for many years. I especially wanted to mention your role as the mother in "The Great Santini". Of course, "Huff" is terrific and you are definitely the star of the show! Sincerely, Davesmom in Pittsburgh, PA
davesmom
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#50044 05-06-2006 11:04 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Thank You Blyth Danner!!!
I hope you realize the impact your support means to the Oral Cancer Foundation. Who knows better than one who has traveled this path as a caregiver, wife and Mother. Your help in getting the word out, "Early Detection Saves Lives" is invalauable! I thank you again for donating your time to help such a dedicated website and founder Brian Hill.
Sincerly, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#50045 05-08-2006 01:30 PM | Joined: Apr 2006 Posts: 2 Member | Member Joined: Apr 2006 Posts: 2 | Ms. Danner/Mr. Hill, Thank you for giving a voice and a face to this issue. It is unfortunate that "loss" or our fear of loss is what unites us. Your dedication to increasing public awareness encourages me to see hope for a future free of oral cancers. Keep up the good fight, Gary E. Trout | | |
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