#49626 09-19-2004 04:01 AM | Joined: Aug 2004 Posts: 30 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Aug 2004 Posts: 30 | My little sister is currently battling oral cancer and I am interested in playing an active role in educating people about and raising money for the OCF. In Pittsburgh, they have all kinds of walks for cancer - ovarian, breast, etc. I do not know of a walk for Oral Cancer.
My sister used to play rugby, and I am in the process of talking to her team about sponsering a benefit - tournament for Oral Cancer, but I'm not sure if it they will be able to do this.
I would really like to organize a walk, but I am usure of where I need to start and who I need to get involved. If anyone can give me some guidance or help, I would really appreciate it. i would like to see that all proceeds go to the OCF. I know they make t-shirts for the other walks and people sponser walkers who participate.
Any advice or help would be greatful.
Thanks,
Angie
Sister of Kim, a 24 year old cancer fighter diagnosed on 12/5/04, who fought strong and hard and died with dignity and honor on 1/3/05.
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#49627 09-19-2004 09:03 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Hi Angie I really cannot help but wanted to wish you luck. We all do what little bit we can. Thank You! Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#49628 09-19-2004 03:25 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Angie,
Thats exactly what the OCF needs. However we can raise funds to educate people about this Bas___d of a diaease. I would think you could hold the event and forward the proceeds to the foundation. We shouldn't have to jump through hoops to promote events.
You might want to email Brian Hill and he can offer some advice on raising funds. We are holding the first annual OCF reunion next Friday & Saturday in Las Vegas. Should be a good time.
My hats off to you for wanting to help.
Your Friend, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#49629 09-19-2004 03:42 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Hi Angie, First thing you need to do is contact your city to obtain an Outdoor event and Entertainment application. I am in the process of putting together a walk/marathon in my area and while there are a few hoops to jump through, it's a doable process. Asking for help is the BIGGEST step. Are there many rugby teams in your area?? I contacted all the Allstar cheerleading teams in our area and that right there made my numbers huge. Two of the clubs have over 200 kids each, and there are many,many smaller ones. Add up the $10 registration fee, donations, vendor profits, other sales, and there is a good chunk of money for the OCF. Let me know if I can help in any other way. Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#49630 09-20-2004 12:54 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Angie and Minnie, please let me know if I can be of any help to you guys, even tho I am in Baltimore, perhaps I can drum up publicity for your events posting fliers or something of that nature and certainly attend. Angie, how is your sister doing? Her and I had corresponded thru email, please let me know, been wondering about her. Thanks, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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