#48575 07-20-2007 01:42 PM | Joined: May 2007 Posts: 11 Member | OP  Member
Joined: May 2007 Posts: 11 | Hi everyone.
My husband has only three radiation treatments to go (yay!), but his second Cisplatin treatment three weeks ago was so tough on his kidneys that he's had a rough time. He got really dehydrated. A new picc line has let him get round-the-clock IV fluids at home without going into the hospital, and he is finally on a night pump feeding into his peg tube.
Anyone out there with this experience? His normal creatinine level is around .9 to 1.1, but the Cisplatin got it up to 3.5. Five days ago it was 1.8, but nearly constant IV fluids has only brought it down to 1.7 yesterday. He's getting IV fluids (3 liters every 24 hours) until he sees the chemo doc on Monday. The doc said that depending on how it goes, he may get a dose of Carboplatin in a week.
Thanks for any advice!
Shelly
CG to husband, age 58 (nonsmoker/seldom drinker), Dx SCC right tonsil and one node - tonsilectomy 5/15/07, Rx Cisplatin x 3 with IMRT x 35, Peg 7/6/07, last chemo 7/20/07 and last rad 7/25/07; PET scans clear until 4/10, 9/13/10 diagnosis of "ALL" leukemia, in hospital for 2-4 weeks treatment
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#48576 07-21-2007 02:18 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Shelly, Was your husband tested for HPV? I had 3 cis's and I constantly battled dehydration. Good luck.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#48577 07-21-2007 02:53 AM | Joined: May 2007 Posts: 11 Member | | OP Member
Joined: May 2007 Posts: 11 | Hi David. Thanks for your reply - that Cisplatin is some rough stuff! He hasn't been tested for HPV. He also doesn't want to know what stage his cancer is and doesn't want to know any statistics about survival rates ... he says he's just going to beat this cancer and all that info doesn't matter. I think that having this attitude is helping him stay upbeat and is getting him through the rough part, but I have to admit that I'd like to know if he's HPV positive. Oh well ... When did you finally get past problems with dehydration?
Shelly
CG to husband, age 58 (nonsmoker/seldom drinker), Dx SCC right tonsil and one node - tonsilectomy 5/15/07, Rx Cisplatin x 3 with IMRT x 35, Peg 7/6/07, last chemo 7/20/07 and last rad 7/25/07; PET scans clear until 4/10, 9/13/10 diagnosis of "ALL" leukemia, in hospital for 2-4 weeks treatment
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#48578 07-21-2007 05:59 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | You'll get past dehydration problems when he is able to consistently take in 2-3 liters of water every day. Keep a log of fluid intake and if he vomits those fluids need to be replaced. Liquids in food count a little too.
Cisplatin is very hard on the kidneys if you get dehydrated. If he needs rehydration the best place to get it (and also much faster) is in infusion rather than the ER if at all possible.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#48579 07-22-2007 04:11 AM | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2007 Posts: 211 | I have followed this 2-3 liters of water a day guide with my husband this past week and he feels great after feeling pretty lousy after his cisplatin, taxotere, and 5 FU.
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
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#48580 07-22-2007 08:41 AM | Joined: May 2007 Posts: 11 Member | | OP Member
Joined: May 2007 Posts: 11 | Thanks for the replies.
Hopefully when he has his bloodwork done tomorrow, his creatinine level will be better. He was supposed to get his third Cisplatin treatment last Friday, but it was cancelled due to what his doc called "acute renal failure." That said, he didn't think there would be permanent damage to his kidneys.
If the creatinine number looks good tomorrow, the plan is for him to get Carboplatin instead this Friday.
Shelly
CG to husband, age 58 (nonsmoker/seldom drinker), Dx SCC right tonsil and one node - tonsilectomy 5/15/07, Rx Cisplatin x 3 with IMRT x 35, Peg 7/6/07, last chemo 7/20/07 and last rad 7/25/07; PET scans clear until 4/10, 9/13/10 diagnosis of "ALL" leukemia, in hospital for 2-4 weeks treatment
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