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#47789 03-28-2007 10:35 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Oh how complicated this system seems to us Brits.Every one in the UK has one doctor called a General Practitioner,or family doctor he sees you about anything that is wrong with you be it surgical,medical etc.He sends you to the hospital if he thinks it is necessary to see an appropriately qualified specialist.Rob saw a Head and Neck consultant(i think you call then attendings but not sure) for all his treatment until radiotherapy was required .Then he was handed over to the Oncology Department in the cancer centre.The structure is Consultant,(Attending) Registrar(Chief Resident)House Officer (Resident)If Rob is poorly,or needs anything ,we tell the radiographer who bleeps the Doctor (usually the registrar),who comes down to radiotherapy and sees us and writes up any meds Rob needs for whatever the problem.We are seen every seven days by the doctor and dietician as a routine and if he is ill i take him to radiotherapy and they get a doctor.On top of all this a copy of everything done at the hospital is sent to our GP so he is on board if we have to call him out.It must be a desparate situation not knowing who to ask for what ,i hope it i resolved for you.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#47790 03-29-2007 01:45 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Liz,
It is also pretty standard for people in the US to have a GP (and I did prior to my cancer diagnosis). For me the problem was that he was one of several doctors who failed to act on the lesion on my tongue, even when I specifically had him look at it, and once I received my diagnosis I had no more confidence in him. When my MO offered to become my primary care doctor, I took him up on it, because he had done a great job with overseeing every aspect of my treatment. Virtually any time I have any type of test or procedure done (for any reason), he gets a copy of the results, so he really does fill the role of a GP.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#47791 03-29-2007 11:32 AM | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | Advocate communicated with Docs. RO is now taking a little more time and actually comes into the room to talk to me.
Surgeon wants to do a brain MRI and see me. uh oh. On the initial MRI from surgery time, there was nothing on the brain image.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
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#47792 04-01-2007 04:00 PM | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | I Got a lot worse this weekend (3rd weekend; is this the dreaded "after 3 weeks". I do about 3 treatments per week, miss Friday typically as I am too sick. Then I recover over the weekend.
This weekend I did not recover; I got worse. Could not get out of bed or eat which of course made me a lot worse. I got really dizzy and weak and nauseaus.
Everything I taste/smell is nauseating including boost and other liquid food.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
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