#47248 10-03-2006 10:16 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Congratulations on the last chemo and almost next-to-last XRT! It's true that for most people they feel just as bad or worse for couple of weeks after radiation ends, but at least you're done with going to radaition every day, the mask, etc. You can just rest. And spit phlegm :rolleyes:
I actually ended up in the hosptial with a fever from a mysterious infection for about 10 days after the end of radiation--my WBC and RBC was so low from chemo they kept me there until the fever went down and the RBC started looking like it would increase. The fever came on about 2 days after radiation ended. They never did really figure out entirely what caused it and I think it was just my body saying "enough"! I'm telling you this as a basis for downward comparison so you can feel like your next two weeks are better than that!!!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#47249 10-04-2006 02:32 AM | Joined: Aug 2006 Posts: 167 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Aug 2006 Posts: 167 | Hey Tim,
We hadn't heard that the weeks after were the worse till about week 5 or so of treatment; a dr made mention of it. Well that sure concerned my Dad. However here's how it was for him. The last week of radiation and the week after were the worse; he had lot of phlegm; and they were the only 2 weeks he took pain meds throughout his entire treatment. From there on he started improving. You'll be amazed how every week you can see and feel changes for the better.
By the end of 2 weeks out from treatment he was 'starting' to test foods by mouth again.
Like Nelie pointed out; you won't be going to rad daily, so just being in the comforts of your own home and relaxing more will help.
Hang in there!
Lisa
My Dad (Sam) at age 69 dx SCC Base of Tongue T1N2C Well-Diff - March 2006.
35 IMRT rads & 3 Cisplatin chemos - Apr-June/06. Nodes shrunk 50% Dr's suggest ND. Negative PET - he declined ND.
March/07 Had Bilateral ND. No Cancer!! Doing Well!
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#47250 10-04-2006 02:49 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Tim, my worst week was the week AFTER treatment. My doc's had warned me though but I still wasn't prepared. I lost 10 pounds that week alone and spent 3 days in the hospital. As lisa says after that it got better and by week 3 I considered myself out of the tunnel and was off all meds and drinking 5 cans of that VHC uck and noe at almost 6 weeks I have gained 6 poundes back. It will be dark for a while but there IS light at the end of that tunnel. I guarentee it.
David
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#47251 10-04-2006 08:04 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | David,
Why did you wind up in the hospital?
Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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