#44966 05-26-2005 03:42 AM | Joined: Mar 2005 Posts: 15 Member | OP Member Joined: Mar 2005 Posts: 15 | Help have lost 15 lbs or so in last week been put off for rest a week on radiation as so sick not keeping anything down was at radiology Tues. Dr. order blood work up and withheld treatment as had lost another 2.1 pds overnight. Gave me a Zofran help nausea that day went to compazine suppositories that night and ever since. Did do better Tues afternoon and yesterday morn. but started back last night and this morning. Everything thastes so bad just comes back up even meds. Help
Donna Proud Navy Mom
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#44967 05-26-2005 04:09 AM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Mar 2003 Posts: 251 | Donna, Do you have a PEG (feeding) tube? If not, maybe you should talk to your doctor about this. My husband was losing weight about as fast as you are and when he finally got the PEG tube, things were much better. It is also a much easier way to take your meds - you just have to grind them up and mix with liquid.
Best, Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#44968 05-26-2005 08:21 AM | Joined: Feb 2005 Posts: 118 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2005 Posts: 118 Likes: 1 | I agree with Anita: Speak with your doctors about a PEG tube. I had one placed before radiation and chemo and was able to maintain my weight, take all medications through my tube. My doctors believe it was a factor in the ease with which I managed treatment. Not for everyone but given your current problems you should immediately address it.
Be well. Zenda 12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
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#44969 05-26-2005 04:34 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Donna, I can definitely relate to what you are going through. How far away from you was your last chemo? Every chemo I have had (I've done 2 of 3), I have a seroius problem keeping things down, for several days after, including meds. Even though I hate the way they make me feel, thank God for the compazine suppositories. I'm also taking Zofran on top of those and that makes things managable, although I still get sick it isn't all day.
The one things is, I do have a PEG tube which helps a lot in terms of geting stuff down. You can still vomit up stuff you've put in through the PEG but at least not everything that goes in you is soemthing you taste! I'm at the point whee even plain water tastes awful right now.
I have still lost some weight even with the tube, because of all the vomiting the weeks after chemo, but it's about 2-3 pds per week at most so that isn't too bad. I do beieve staying decently nourished and hydrated makes a difference in how you get throgh treatment.
I give myself lots of water through the PEG so less chance on dehydration.
God luck finding the balance that works for you...or, at the very least, on finding times of day when you can get stuff down.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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