#44843 04-29-2005 01:41 AM | Joined: Apr 2005 Posts: 25 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2005 Posts: 25 | I am just starting treatment. SCCA base of tongue,T3N2aMo. Age 62, X smoker + etoh.
My surgeon says the primary is large, invasive but not across midline. He biopsyed it but did not attempt to remove. Did a L mod Radical neck, lost the 11th nerve. He says studies show similiar outcomes whether primary removed or not (plus rads and chemo). Anyone agree or disagree?
Also, I have seen a lot of discussion regarding swelling with radiation. Any have trouble with obstruction of airway?
Thanks, Edd | | | 
#44844 04-29-2005 01:10 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Agree; it is not always necessary to remove even part of the tongue. Sounds as if your medical professionals have the situation well in hand.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#44845 04-29-2005 07:23 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | In many cases the primary tumor can be dealt with, without surgery at the primary site. I for one, was treated at MDACC, and had radiation to my right tonsile and the surrounding area where the stage 4 primary was located, and had no intraoral surgery. All of my surgery was related to the neck dissection. I have not heard of this treatment modality on the tongue, but I am not an expert on this.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#44846 04-29-2005 08:38 PM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | Edd,
My husband also has BOT and the docs here said no surgery. They told us about the same as what you were told. The results are the same whether they cut or not so the doc decided not to. Rad and Chemo only for now.
We have all Baylor docs at Methodist here in Houston.
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#44847 04-30-2005 03:40 AM | Joined: Apr 2005 Posts: 25 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2005 Posts: 25 | Thanks all, for your responce. Had a Dr apt today, the oncologist explained it better than the surgeon.
First time a Dr ever told me he didn't want me to lose weight, during treatment (260)! Edd | | |
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