#44819 04-17-2005 04:03 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Nelie, just some more support for you. I do not know any reason why this should be happening. I think you will be able to get them to resolve it. Be persistant and LOUD if necessary.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#44820 04-18-2005 12:30 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Thank you. Everything starts for real today and I'm nervous (though also I can't imagine having to wait any longer so I gues it's time).
I'm hoping the Amifostine doesn't bother me, the head pain thing during the radiation gets resolved, I actually get to talk to the radiation oncologist after, and the chemo, this afternoon, doesn't bother me too much or make me nauseated (the oncology nurse sounded very positive Friday that that part would be OK so I'm really more worried about the Amifostine and radiation in the AM).
Thanks for the support. I am so glad to have found a palce where other people have been through this.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#44821 04-18-2005 07:27 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Give 'em hell Nelie! You'll mske it.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#44822 04-20-2005 12:09 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | thanks for all the suppport. Monday they let me move my head n the neckrest until I thought it felt right (or as right as possible) and then did the mask an, with having alos taken a hydrocodone pill, it was very manageable (also, even with the xrays they took, the whole things was half an hour--it was at least 40 min Friday and the last minutes are the worst in terms of neck pain).
Getting the chemo went well Monday, and the amifostine. But yesterday, I was anuseated from when I woke up and teh amifostine amde it worse. I toughed out radaition just barely. As soon as they moved the table at the end I sat up and vomited. And its been worse since then (yestreday afternoon and all night). can 't even keep compazine down right now, let alone anything else. I don't know how I'm going to get through rad. today.....
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#44823 04-20-2005 12:59 AM | Joined: Apr 2005 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2005 Posts: 58 | You will get through rad today because you will put your mind to it! :-) You know you can win and you will . . . read how positive all your posts are.
Tim
SCC Right Tonsil, T2N1M0, Dx 12/04, Tx 40 radiation (180 rad), 8 Chemo (carbo), Tx ended 3/15/05, Selective neck dissection 5/24/05, 22 nodes, 4 levels, no evidence of metastatic malignancy!!! :-)
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#44824 04-20-2005 10:27 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Hi Nelie - there is always compazine suppositories and they work pretty well (can't puke 'em up either.
I have the amifostine can be a little rough. What kind of anti-emetics are you taking?
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#44825 04-20-2005 02:14 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello Nelie,
Each diffucult journey appears worse than it actually is. You have started yours and I know you will survive this part of your treatment. Take one day at a time and soon enough you will be past this. The healing time is measured in weeks not days. After radiation ends you start to feel better in a few weeks. The gift that keeps on giving. Please post questions you have and come and vent here anytime. We all were you are now at one time.
Hang Tough Nelie, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#44826 04-21-2005 07:19 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | I got the compazine suppositories and thanks to them and anothr kind of anti-emetic they put down my port before the Amifostone, as well as some Ativan (which means I don't get as panicky about small quesiness and make it get bigger) I've made it (mostly half asleep) through radation. I just wipes me out for the resyof the day too, though. Oh weell. (and I can'ttype worth beans on all this stuuff)
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#44827 04-21-2005 07:50 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | By the way you can insert the Ativan into the suppository and it can be absorbed that way also. You'll adjust to the drugs in a few days. Ativan is also commonly used for an anti-emetic also. Chemo does a number on the stomach lining and pH in the stomach so perhaps industrial strength antiacids may help, such as Famatodine (Pepcid AC). Tell them you want a script in case your insurance pays for meds.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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