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Joined: Feb 2005
Posts: 2,019
Nelie Offline OP
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Feb 2005
Posts: 2,019
Yeah, I'm hoping that's the case, Kirk. The rad. oncologist from Roswell Park that is here now until they hire someone else said the first two weeks are usually not bad but I don't think he was thinking about doing rad with chemo, which I udnerstand can make the symptoms worsen quickly.

He said in his experience people usually have the hardest time in the 4th and 5th weeks because that's when the bad symptoms happen but before they've adjusted/ gotten into a routine about how to manage them. He said that's when I'd be wondering why the heck I was doing this.....


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Joined: Feb 2005
Posts: 2,019
Nelie Offline OP
Patient Advocate (old timer, 2000 posts)
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Joined: Feb 2005
Posts: 2,019
well I had two friends that were gong to visit today. I don't know if the second one will because there is flash flooding between where I live and where she lives but the first was here this morning and my stomach hurt from the PEG insertion every time I laughed. She had me laughing a lot. Sometimes pain is worth it smile


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Joined: Sep 2003
Posts: 1,244
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Sep 2003
Posts: 1,244
Nelie
So sorry that the peg site was so sore, BUT glad you can still laugh, she must be a very good friend to have around...
Sunshine...love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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