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#44549 02-03-2005 11:34 AM
Joined: Jan 2005
Posts: 2
Amelia Offline OP
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Joined: Jan 2005
Posts: 2
My sister, who has had a partial glossectomy and her saliva glands removed suffers from dry mouth.

Are there any products that anyone can recommend to alleviate this condition?

#44550 02-03-2005 11:39 AM
Joined: Dec 2003
Posts: 2,606
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
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Amelia,

There are some products on the main part of this website. Click on the link on the bottom to access the home page and follow from there. Also, you can search the forum and find tons of suggestions from a whole lot of folks that have found a handful of things that make it a bit easier to live with.

Good luck and welcome to the neighborhood.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#44551 02-03-2005 11:51 AM
Joined: Feb 2004
Posts: 372
"Above & Beyond" Member (300+ posts)
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"Above & Beyond" Member (300+ posts)

Joined: Feb 2004
Posts: 372
Amelia,
Dan uses Biotene toothpaste and Betacell mouthwash and ALWAYS has to have a water bottle at all times. I don't think in Dan's case it will ever be alleviated as he has no saliva glands left.
God bless and take care,
Debbie


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
#44552 02-03-2005 06:02 PM
Joined: Feb 2004
Posts: 218
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Posts: 218
Amelia,
You didn't mention if your sister had radiation as well and if so, how long ago. I found that certain products helped at different stages of the healing process.

I currently use Biotene toothpaste, mouthwash and gel (now 8 months post radiation) but early on, I found that the Biotene gel was too thick for the dryness of my mouth (even if I warmed it up some by running it under hot water) and used a product called Salivart. Eventually, my taste buds changed and I could no longer stand the taste of Salivart. Then I tried MouthKote Oral Moisturizer and something generically called Saliva Substitute by Roxane Labs. Each time my taste changed and I couldn't use those products any longer. I ended up settling on Biotene.

My advice would be to experiment and find out which products work for you. When they start to taste funny or stop working, try something else.

Best wishes, Sheldon


Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
#44553 02-04-2005 05:23 AM
Joined: Jun 2002
Posts: 206
Platinum Member (200+ posts)
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Platinum Member (200+ posts)

Joined: Jun 2002
Posts: 206
Hi Amelia, I had radiation in 1991 and still have a very dry mouth. I keep a cup of ice water with
me all the time even at night I find it helps.
The other thing is Ice Cream especially the Root
Beer Pops they are real good.
Cathy


Cathy

SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo

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