#44408 01-12-2005 01:52 PM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | OP Senior Member (75+ posts) Joined: Jun 2004 Posts: 85 | First of all, THANK YOU all for all your encouraging words and prayers and quotes. I have printed them out to give to David to read. (if he can focus..just gave him meds.)
I had David discharged from the hospital on Tuesday at 10:00 am and had him at the Oncology Clinic closer to home by 11:15. They were administering Chemo to him by noon. ( Taxotere and Carboplatin) He tolerated it very well and I had him back home in his flannel comfy sheets by 4:00. I think he slept solid for the first time in weeks. The pain seems to be under control. Yeah!! We had him on too strong meds at the hospital and that made him too loopy. But the docs were trying to find a good balance. I have him on 5cc of Methodone every 8 hours with one 75mg Fentanyl patch for pain and lots of anti nausea medicine for the chemo.
The PEG tube is great. To anyone that is concerned about getting a PEG inserted, please do not worry. It is very easy to use and the discomfort of it goes away after about 24 hours. Even David was surprised. He said that he finds it easier to deal with than the nose tube. (although it is less invasive.)
So dear ones, we are at the moment, quite "well". Tomorrow will come and it may be different, but in the here and now...we are fine.
Chemo will administered once every 3 weeks for 8 sessions with a scan halfway in between to see if the tumor is shrinking. I would like to hope that we would visually be able to notice something before then.
Thanks again.
Brenda
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04. 2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#44409 01-12-2005 02:54 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Feb 2004 Posts: 372 | Brenda, So glad to hear that things are under control. Dan went from 25 to 100 on the Duragesic Patch during his treatments which helped so much. We now live in Alabama, probably only 2 or 2 1/2 hours from you...if you or David ever want to talk to Dan or me, please feel free to send me a private email and I will give you our info. May God bless you and help you thru this time...Thoughts and prayers are with you. Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#44410 01-14-2005 07:57 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Brenda,
I am glad things are going better for you and David. I remember when our first son was born and on the first doctor visit we were asked how the baby was eating. As soon as I mentioned we woke him up to eat in the middle of the night the doctor screamed at me, "...who would wake a sleeping baby? That's when YOU are supposed to sleep!"
I hope while David is resting, you are, too! Don't hesitate to up the patch if needed. I ended up at 150 and could have gone higher. The key is to minimize the pain and still remain somewhat functional, under the intense circumstances as it is.
May tomorrow be even better than today.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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