#44226 11-24-2004 12:49 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Nancy,
I just read your share and it breaks my heart that you had to go through this alone. I can't even imagine going through treatment without my loving wife helping me. You are truly a very courageous person.
Nicki, I will keep you and Tom in my prayers.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#44227 11-24-2004 01:40 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Nicki, I went to physical therapy for 6 weeks as that was all my insurance paid for. I started about two months after surgery, but had been doing the loosening-up exercises they give you after the surgery. No effect on swallowing or anything else. Got off pain meds about 6 weeks after surgery. Was never admitted to the hospital. After surgery, I was in the post op ward and then sent home the next morning. I was only in the hopital for about 20 hours or so. I spend as little time inside as possible. There are sick people in there. Will pray for you both that this is the last of it and it is all uphill from here on out. Am sure Tom will come through with flying colors.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#44228 11-24-2004 06:41 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Hi,
It is a dreary day - I left work early (for ME for once!) to get a jump on the Big Feast preparations. I love putsying around the house when it is raining and gray - such a comforting feeling.
And TOM IS AT WORK - so I have the house alone for the first time in what seems like forever! I get lots more done when I'm alone...
Kirk - you are so right about the sick people in the hospital! I recall so vividly our first day at chemo - I felt so strongly that WE DID NOT BELONG THERE! I shudder to think he'll be admitted for as long as they are talking; I suppose they know what they are doing, and perhaps he'll have a private room, which will make it better.
This is going to be a most meaningful Thanksgiving; I want each of you to know how grateful I am that you came into our lives. The past few months were easier because of you. As I bow my head in thanksgiving for all the blessing God has bestowed on us, I will be thinking of you.
I pray each of you has a safe and joyous celebration in your homes with your family and freinds around you. For those abroad who don't celebrate our special day, remember that we'll be thinking of you, too!
Love
Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#44229 11-24-2004 07:13 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thank You Nicki, God Bless You, Tom and your family and enjoy Thanksgiving!!! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#44230 11-28-2004 01:12 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Nicki,
I am sorry you and Tom have to wait so long for Tom's surgery. I can't imagine how heavy this must be on the mind and the heart. Much of what Tom is experiencing right now is just part of the grieving process that one experiences after such a tremendous loss. Tom (and you, of course) has lost his old life and especially right now is just starting to experience the worst part of radiation and now is facing surgery. Any one of these things would be tough by itself.
I am praying for comfort and peace for both of you and for His wisdom and guidance for the entire medical team to provide the best possible treatment for Tom. I know through it all, He will be there to carry you and/or Tom when you need it most.
God Bless,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#44231 11-29-2004 05:34 PM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Nicki,
Like Ed, I am sorry you have to wait. Keep on loving each other as you do. Tom is very fortunate to have You for his support. Tell Tom that he just might find that the "new self" can be better than the "old self" in all the things that are really important. Praying for you both.
Jack
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Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
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