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#4416 12-08-2004 07:44 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I thought I would move this up to a new thread.
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Word
Member
Member # 1739
posted December 08, 2004 11:34 AM
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Hello,
My name Max Power and i am doing a project on oral cancer. i have already looked up information on the subject but thought if i had information from people who suffer from it, it would greater my knowledge and really get a sense of the disease.
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Posts: 1 | From: Nebraska | Registered: Dec 2004 | IP: Logged
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#4417 12-08-2004 09:49 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | We don't we link him up with the other person doing this (Meg) so we don't have to repeat everything all over again. The archives are a great reference source for anyone doing research on the personal aspects of it (and don't forget the OCF home page while you're at it - you could get thesis material from that alone).
Good luck on your project - the more information that people have and the earlier the detection, the better the chances of survival. If you don't use tobacco products, drugs or alcohol - don't start.
One of my favorite sayings is "If I knew I was going to live this long, I would have taken better care of myself."
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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