#43979 10-14-2004 03:37 AM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Feb 2004 Posts: 261 | I saw my ENT Tuesday morning & he said all looked good - another 30 day check up. I told him I had been experiencing a slight sore throat on right side & pressure or fullness & slight pain in right ear, same as before dx. He ordered a cat scan just to be sure. I'm not freaked out, just a little nervous. Of course all the thoughts of reccurance go through my mind. We'll see what shows up. IF it's back, I'm ready this time & will fight like hell even harder than before 'cause I kinda know what to expect & what might lie ahead. I know I'm future trippin'! Isn't that what makes us human? I wish all good health & happiness! Will check in later.
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#43980 10-14-2004 03:58 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Feb 2004 Posts: 372 | Hey Erik, Praying for you as I read this...hang in there and let us know what you find out. It's just so hard not to freak out. I get so nervous about every pain Dan experiences thinking all must be cancer related. It's always good to find out they are not! Take care and God bless, Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#43981 10-14-2004 04:20 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Nov 2002 Posts: 274 | Erik,
Not to minimize your concerns, those are very common post treatment symptoms. I'm over 2 year out and I still get those very pains. I had my 2 year neck CT and surgeon visit yesterday so I hope I'm not eating those words on Monday! Seriously, it sounds like normal "5 month out" pain.
Glenn | | |
#43982 10-14-2004 04:49 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello Erik,
You wouldn't be human if you were not concerned. Better to stay calm and think positive about those pains. Sometimes easier said then done. I am hoping the scan shows nothing and you continue to heal.
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#43983 10-14-2004 06:15 AM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2004 Posts: 76 | Erik, I pray your results are CLEAR, NORMAL, no sign of recurrence NOW & FOREVER!! I am so angry at this disease that makes us scared of our own bodies. I am anxiously awaiting my pathology results later this morning. I am glad that we can support each other here. Best wishes Take care Maria
01/04 SCC of tongue base, T1N0M0 03/04 Partial glossectomy 04/04 Rad 12/04 Throidectomy(follicular cancer)
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#43984 10-14-2004 10:43 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Feb 2004 Posts: 162 | Erik,
I get those types of pain and feelings of fullness off and on ever since my treatment ended. I'm happy to say that they get fewer and farther inbetween the farther out from treatment I get. My docs tell me they are only really interested in things that consistently last two or more weeks, which none of mine ever have. Good luck with the CT scan.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003. Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#43985 10-14-2004 04:26 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Erik,
I have had virtually no pain in my neck for a while and suddenly a couple of weeks ago it started hurting plus behind my ear and my throat. I have had a PET scan, xray and physical exam but everything came back fine. I still worry a bit about it because it doesn't make sense. I am hoping everything comes back NO CANCER for you.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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#43986 10-15-2004 01:32 AM | Joined: Apr 2002 Posts: 80 Likes: 1 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Apr 2002 Posts: 80 Likes: 1 | I am 3 years out never had any scans. Went for thyroid panel check Oct. 12, Dr. put me on synthroid. Also while she was checking she found a swollen lypmh node on the same side I had surgery, so she sent me for ct scan they did blood work which the lady that took the blood couldn't tell me what they were checking for, does anyone here know. I hope to hear from the scan today.Erik I know what you are going thru, your mind just tends to go where it wants to go, and you have no control. When I read all these post I just cann't help but wonder how any others are out there with no help like this. I will say a little prayer right now for good news for you, and may God Bless You.
JOAN
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#43987 10-15-2004 05:15 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jul 2003 Posts: 382 Likes: 3 | Joan-
We are saying a prayer for you too! The waiting for results is always when the clock seems to run on molasses. I wonder why in 3 years you haven't had regular ct scans. Are you having chest xrays at least annually? - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02 Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation Every day is still a gift :-)
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#43988 10-15-2004 05:47 AM | Joined: Apr 2002 Posts: 80 Likes: 1 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Apr 2002 Posts: 80 Likes: 1 | Kris I have had check ups with the Dr. that did surgery, he said he could feel anything by the time a ct scan could pick it up. I saw him every month for 6 months then every 3 months then 6months. He has just changed to annually and I did get the chest X-ray annually he never has ordered any scans. After he removed part of my tongue the next week I found nodes that were swollen he tried to tell me not to worry it was from surgry, I had to insist on him doing more surgery. He removed 5 nodes 3 were cancer, so it does upset me a little. Even if this is nothing, Thanks for the support!
JOAN
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