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#43943 10-09-2004 02:03 AM
Joined: Aug 2004
Posts: 217
Nicki Offline OP
Platinum Member (200+ posts)
OP Offline
Platinum Member (200+ posts)

Joined: Aug 2004
Posts: 217
I do a lot of heavy sighing these days, Miss Vicki. I, too, sometimes wonder if I am torturing myself needlessly by coming on this site and reading the not-good news. Then I realize how uplifting the good-news stories are, and how good the people here are me - - not only to help me understand what will be happening, but also how to cope with the tangle of emotions I feel from day to day.
After a very long day, Tom had a good night. We are planning a few little things today to get him out of the house and give him something a bit more interesting to do than sit at home. His weight went down again while he was in the hospital...it is 133 today, so we are doing damage control.........
Hope everyone has a wonderful weekend.
Nicki


Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
#43944 10-09-2004 05:41 AM
Joined: Jul 2003
Posts: 1,163
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2003
Posts: 1,163
Hello Nicki,

You might want to try giving Tom some smoothies thru his peg tube. It lke eating a large malt. It has 1300 calories each. I am eating two per day plus at least two meals to boot. Having my own weight problem. Am bound and determined to add weight every week!!!

1-cup whole milk
1/2-cup half & half
1-Package carnation instant breakfast
3-Tablespoons Oveltine
1-Tablespoon Malted milk powder
2-cups ice cream

It makes a little more than 1 tall glass can hold.
Tell Tom to hang in there. He is not alone and many of us can relate to his feelings. I think your doing a great job as his caregiver, make sure to rest yourself. Charge up your batteries as often as you can. Hoping Toms treatment goes by quickly. The end is in sight!!!

Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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