#43813 09-02-2004 02:37 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
Hope tonight is one of those rare nights where everyone is content. I've been on the board for about 1 hour and feel better relating with my "Band of Brothers"
Just wanted to let everyonre know I'm getting a port in my upper chest just below the skin for Blood draws and chemo infusion tomorrow morning. The last three or four weeks they seem to take three to five pokes before they get the vein. At first they hit the vein the first try, Not anymore.
I will be continuing to receive Carboplatin & Taxol once a week for three weeks followed by one week off. They plan on doing this until the end of the year. The nurse told me that if I wanted another MRI after two months that would be my decision. I think I will have the scan around October 20th. I want to know if it's continuing to shrink the tumor before January.
I still feel fine and am having no side effects from the chemo. It does make one tired after a couple of days but I nap when needed.
I upped my anti-depressant pill to 45mg from 30mg this week. Hoping that helps my mood swings. Most of them have been negative the last month or so.
Glenn, Trying to take your advice about not dwelling on the mechanics of death.
My two children are coming to Vegas with my wife Marcee & I. I wanted to have some fun while I still feel good. Intend to eat like pigs, See some shows and finally meet some great friends I've never met in person.
Thanks for letting an old hayseed from Wisconsin
vent a little!
Love ya All, Danny Boy
P.S. Brian Hill is my choice "Man of the year"
Who else has had the impact his efforts have had?
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#43814 09-02-2004 03:34 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Good to see you feeling positive, Dan. You and your family are in my thoughts. Love from Helen 
RHTonsil SCC Stage IV tx completed May 03
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#43815 09-02-2004 04:23 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy,
I wasn't sure if you had the port before but I had one and it was the greatest thing for me. They sometimes get clogged up or the valve in them stops working but generally they keep you for getting poked to death. I had so many problems with veins before the port. I put a lot of bags of fluids through my port when it was tough to keep from getting dehydrated. I was up to 3 litres a day for quite a wheel to keep the creatinine down.
I am so happy you are feeling good. You are the bomb, man!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#43816 09-02-2004 06:52 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Dan, my first wife had one put in also and it was great for her, she was terrible with needles.
Just saw a program on HK TV last night called the "Well Seasoned Traveler" this week his stop was all the great restaurants in Vegas. The 5.99 buffets are a thing of the past, but the food looked GREAT!! I think the main reason I come back to US these days is the food!!!
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#43817 09-02-2004 07:20 PM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jun 2004 Posts: 85 | Dan,
Thanks for the update. Encouraging to here the chemo is leaving you pretty well alone. You are my inspiration! Have a bomb in Vegas.
David
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#43818 09-03-2004 03:38 AM | Joined: May 2004 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: May 2004 Posts: 80 | danny,
thanks for the update. i'm so glad you're feeling more positive and thinking about having fun. sending you love and more positive thoughts.
gita
sister diagnosed 11/03 SCC maxilla keratenizing stg IV T1N1Mx; 4-7 positive lymph nodes; dissection 12/03 left upper pallette removd; radiaton left side 35 sessions 2/04-4/04; recurrence same side 4/04; chemo began 5/04 incl cisplatine, 5fu, taxotere
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