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#43776 08-28-2004 05:09 PM
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Hello all...

One more chemo treatment and three more radiation appointments, and I AM DONE with this latest -- and hopefully final -- round of treatments...

After living out of hotels for six weeks (thank God for the Tour de France and Olympics!), I am so ready to get on with my life and come on home for good...

Actually, my 50-minute radiation treatments weren't all that bad. I just kicked back, tried to stay still and listened to tunes the entire time. I only had to ask them to stop the beam once, and that's because I felt my head slide a bit after swallowing too hard. Whoops!

It was a pleasant surprise when my radiation tech told me this past Wednesday that my last five treatments were only going to last 15 minutes because they were just giving me a boost to the tumor-bed area... I felt like I was cheating or something the first day of the boost, but I wasn't complaining...

I'd be a lot more excited if I didn't have this third round of chemo coming up as well... It definitely takes my stomach for a ride for a week or so... which means I don't eat much... which means I lose more weight... which means doctors and others heckle me about that more and more... arrggg...

Anyway, I covered a high school football game for my newspaper on Friday night, and felt pretty good working a 7.5 hour day today (Saturday) getting the paper out. Can't wait to get back to that normal routine...

MRI scheduled for a month from now, with a PET probably in two months or so...

Thanks, everyone, for your encouragement during this time...


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#43777 08-28-2004 09:17 PM
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Glad you are making it through, didn't think anything less from you!
my prayers are with you for the last round!
Sunshine... love and hugs
Helen


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#43778 08-28-2004 10:57 PM
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You are right. You are cheating on the radiation. I, also have three more full sessions and I think you should ask for the full Monty!

Welcome to the end of the tunnel, again.


T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
#43779 08-28-2004 11:34 PM
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Way to go Eric! Good to hear that treatment are almost over. Now you can truly see the light at the end of the tunnel (albeit a long tunnel!). Hang in there. I know that awful stomach queasiness from chemo and how hard it is to keep your nutrition levels up but knowing it's the final round is something to be thankful for. Glad to hear you were able to be back at work, doing the job you love, on Saturday. Surviving 7.5 hours at work during treatments is quite an accomplishment!!! Your great attitude and spirit is an inspiration to me.

Hugs and prayers coming your way,

Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
#43780 08-29-2004 02:20 AM
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Eric! How encouraging you are! We haven't even BEGUN the radiation, but I'm already feeling optimistic for Tom's well-being during those treatments.
Is a 50-minute treatment the norm???? They've told us 45 minutes, but I assumed that included prep time, etc. 50 minutes seems like a V E R Y LOOOOONNNNNGGGG time!
So glad to 'hear' you sounding so well after all this. Tom's not well at all today frown , I think he'll just sleep to keep the nausea at bay.
Happy Sunday, all. You were, as always, in my prayers.
Nicki


Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
#43781 08-29-2004 02:51 AM
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Nickie, I don't know the normal duration for a radiation treatment but in my case all my treatments lasted less than 15 minutes each including prep time too. It was a piece of cake at the beginning but when it came to the middle and my skin began to burn, 10 minutes was already too long to bear. I don't think I could put up with a 50 minute one.

Karen.


Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
#43782 08-29-2004 09:07 AM
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Hi Nicki -- my radiation doc told me I was the most complicated patient the rad techs had to deal with, so I take it that 50 minute treatments aren't the norm for head and neck. My first rad treatment back in the winter was just 15 minutes. At that point, I thought it lasted FOREVER. Now, that seems like a breeze...

Just keep telling Tom how great he is going to do. Are they radiating in his mouth, his neck, both? ONe of the things that helped me this time is that they are only radiating my neck. Aside from sunburn skin and some minor swelling, it hasn't been much of anything... I'm still able to eat pretty much normally (except during chemo weeks when food revolts me somewhat)...

Will Tom have access to a radio during rad? I know for me, that made a huge difference and kept my mind distracted. Bring in CDs or books on tape or find a radio station with talk radio, and the time will fly. Since I'm a sports writer, I tried to write columns and stories in my head to pass the time...

WIll definitely keep you guys in my prayers -- you can do it!!!!!


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#43783 08-29-2004 03:05 PM
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Hey Eric,
Praise God you are almost done! You have been thru so much also, and you are very encouraging as you do what you need to do! You are in my daily prayers and so glad to hear rad is just about done...Dan's was about 20 or 25 minutes actual treatment, 41 of them to head, tongue and both sides of neck. He was extremely raw by the end, but made it, too!
God bless and take care,
Debbie


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
#43784 08-30-2004 04:18 AM
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Eric!

Great news to hear you are almost finished! Can't believe you can continue working, too. What strength you have!!! You are truly an inspiration to all of us!!! Kick it in the butt this time! - Kris


SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
#43785 08-30-2004 06:19 AM
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Eric,

I am so glad this is almost over for you. You seem to be holding up really well. I know by this point my mom was not doing anything. I can't believe you are working through this. My prayers are with you as always.

Dani


Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
#43786 08-30-2004 11:07 AM
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Eric, Good news. By the time you get this, you will be one more treatment closer to being done. A week of nausia is something you can get through, I'm sure. After all, you've already done it twice, right. My treatments were 30 to 45 minutes, so I know the longer ones can be difficult. I found that it just gave me more praying time with some nice music in the background and before you know it, its over. The last couple of treatments I also got cut down to 15 to 20 minutes. What a pleasure. Almost like no treatment at all. Will pray for your outcome.


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
#43787 08-30-2004 11:57 AM
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Eric -

Congrats on coming this far! The yellow ribbon is ready and waiting for you to cross the finish line! We're cheering you on the whole way!

Sabrina

#43788 08-30-2004 02:49 PM
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Hello Erik,

It's so refreshing to hear good news. The light at the end of the tunnel should be pretty bright!!! Hoping you sail right through it. You have helped so many people through your postings. You have earned the respect of all of us. Its nice to be able to see you doing so well.

Best Wishes, Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#43789 08-31-2004 03:57 PM
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Thanks everyone for such encouraging words -- you can't believe how much that has helped...

Now a question:
I met with my chemo doc on Monday right before my third infusion (I did have a little vomiting tonight -- dang it, I was hoping to say I never threw up from chemo -- rats...). Anyway, the doc mentioned doing a fourth, possible a fifth chemo treatment in the coming weeks (each three weeks apart like the first three).

His reasoning: if there is any metastasis, then MAYBE more chemo would help combat that (though there doesn't appear to be a lot of data on this). Of course there is no evidence that I have metastatic disease, but he's saying it MAY help just in case some microscopic cells have escaped to other places.

I guess my question is: is it worth it? I obviously don't want to look back later and say "gee, I could have done something else." But I also don't want to do something just to do it because it may, sort of, kind of maybe work...

Anyone else do "extra" chemo after their radiation? Thanks for any help you can provide...

Just for the record, my cancer was well-differentiated...

Eric


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#43790 08-31-2004 04:03 PM
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OK, one more question:

It seems to me that when SCC metastasizes below the neck (lungs, chest, etc.) then docs consider it incurable. My question is: why is that? Can they not use radiation in places like the lungs? Is too much of the cancer "free" in the system by that point? Too many vital organs in the area...

Was just curious... I really hate this disease....


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#43791 08-31-2004 05:08 PM
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Hi Erik,

I have the same question as you. Why can't met to other parts of the body be cured. I had IMRT to my throat and they tell me I had my lifetime dose. Whats the difference if they were to hit the lungs with additional radiation what would it hurt. You have already told me the reoccurrance in my throat will kill me. They are treating me for the reoccurance in the right tonsil area with carboplatin & taxol. I asked why you don't seem concerned about the met to my lungs. She told me the reoccurrance in my throat will kill me long before the lung met would. Guess there are no miricles in this world! I am feeling my resolve to beat this diminished by the attitude of standard medicine. What's the point? To have NO hope is very depressing, I still believe I can beat this, Just give me all the options you can. I will make the decisions on weather or not to receive them.

Best Wishes to All, Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#43792 08-31-2004 05:16 PM
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I believe you can beat this too Danny... And I do believe in miracles... I keep praying for one for you (and all of us)...


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#43793 08-31-2004 07:57 PM
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Erik,

As you may recall, I'm on your first time through program without chemo. I do remember a doctor telling me before I started that "they" would love to give me chemo, because I was healthy. I can only assume you are, too, working like you have - or masochistic - and you can tolerate another dose or two.

I don't know if the data is there to support more, but for a few more weeks investment, the payoff is big. Good Luck!

David


T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
#43794 09-01-2004 05:04 PM
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Erik,

I am glad to hear your treatments are winding down! You are certainly an inspiration to me.

Sorry, I can't answer your questions.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#43795 09-02-2004 03:51 PM
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It's Thursday night in the big city of Cottonwood, Arizona and I AM ALL DONE WITH TREATMENT!!!! Yippee!! laugh laugh

I got my second "graduation" certificate yesterday after my last radiation and was told that I had better have "learned all the material" this time around. I know I learned all I wanted to know. I hope my neck and lymph nodes got the message...

The tough part, of course, is the waiting now for future MRIs, PETs, etc. My first MRI is scheduled for four weeks from now, with a PET to follow in 2-3 months...

It's been a crazy ride, and I thank each of you for your support and prayers throughout it all.


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#43796 09-02-2004 04:17 PM
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Yippie tie yie yay! I am doing back flips for you, dude!! I will be praying for a speedy recovery.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#43797 09-03-2004 03:48 AM
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congratulations, eric! i'm happy you've finished this stage and are back at home. may all your future scans turn out clear and you recover fully.

gita


sister diagnosed 11/03 SCC maxilla keratenizing stg IV T1N1Mx; 4-7 positive lymph nodes; dissection 12/03 left upper pallette removd; radiaton left side 35 sessions 2/04-4/04; recurrence same side 4/04; chemo began 5/04 incl cisplatine, 5fu, taxotere
#43798 09-03-2004 09:55 AM
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Erik,

I'm so happy your treatments are done...Now you can get back to normal life.

Where is Cottonwood Arizona anyways? Is it a small town?

My prayers are with you as always,
Dani


Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
#43799 09-03-2004 10:50 AM
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I think cottonwood is a tree that likes to live near water, like streams and rivers. Without alot of water in Arizona it's hard to believe a town was named for a tree they probably don't even have. Oops, I digress.

Erik, did you decide on the extra Chemo?


T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
#43800 09-03-2004 06:23 PM
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For the record: Cottonwood, Arizona is located in the central part of the state, halfway between Phoenix (hot) and Flagstaff (cool at 7,000 feet). We're at about 3000 feet and 15 minutes from Sedona and the beautiful Red Rocks there... The town is named after the Cottonwood trees, which are abundant along the Verde River, which in our case is really a creek (if that)...

As for the extra chemo, I'm leaning against it right now for this reason -- according to my radiation oncologist, it will be of very minimal benefit, if any... I've got some more research to do on it, though...

It's been intriguing to follow my radiation oncologist. For awhile he was gung ho about throwing everything and the kitchen sink at me -- ready to add 5FU to the mix, do an additional surgery to take out a section of lymph nodes that weren't getting a mega-dose of radiation, etc. Now, he's saying "It's OK to stop now -- everything else is of very minimal benefit." I'm kind of confused by it all... I think I'm going to check with MD Anderson about the extra chemo and get their take...

Frankly, I've felt like crap today. stomach-wise. While others throw up for 2-3 days with the Cisplatin, I just feel like I'm going to for 8-10 days... Not sure which is worse... High school football wasn't very fun tonight... And the team I was covering lost in overtime... rats...


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#43801 09-03-2004 08:18 PM
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Appreciate the chemo update and the cartography clarification for the geographically challenged. I have heard that when stomach normalcy returns, you feel that you are really on the way.

Pleased that you're up and about. Sorry for the overtime loss.


T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
#43802 09-03-2004 08:50 PM
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T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
#43803 09-04-2004 01:09 PM
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Erik smile
I surely wish I could meet you! I love your attitude - and I LOVE telling Tom that you are working through all these treatments. He really loves his work - and all the people that work with him - and he hates being away from it on his 'bad' days.
I'll let you all know how long his treatments last...guess it all depends, huh? Erik, you must just have a really thick skin for them to have to bombard you for so long!!! 0)
WE are celebrating with you - and will look for your reports of NEGATIVE checkups!
Nicki


Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
#43804 09-04-2004 07:48 PM
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Thanks Nicki... I don't know about thick skin, it's more like "woody" skin these days around the radiation areas...

It's funny that in this world NEGATIVE is really a POSITIVE... (and vice-versa)... Blessings to you and Tom..

Eric


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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