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AMK,
Dan had his treatments and is having follow ups with University of MD Medical Center. We have been very happy with them also. Don't have to wait near as long for appts. as John Hopkins. They have a tumor board and we have felt like Dan has received the best treatment possible for his cancer.
Take care and God bless,
Debbie


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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AMK,
I am so sorry to hear about your sister & everything you are going through.

I too would strongly encourage getting a 2nd opinion from a comprehensive cancer center - your Dr's can fax them everything or you can get copies of everything and fax them yourself.

You & your family our in our prayers & God does have a plan for each of us.

May God hold you tighter than ever during this time,
Pam


Wife of AZTarHeel, SCC of tongue T2,N1,M0 - 30 IMRT 12/'03 - 1/'04; May 2004 radical neck dissection 1 cancerous lymph node found; cisplatin 1/every 3wks; 33-36 IMRT treatments to lower neck which wasn't previosuly radiated.
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Dear AMK..this thread is heartbreaking..I am sure everyone here feels as I do , I wish we could physically be there to help, to motivate, to advise.
These folks have been thru it all , they can help!
May Your God go with you.
Marica
Caregiver to husband Pete. Stage IV base of tongue.
One year PET clear this week


Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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AMK

I've heard the same about John Hopkins from numerous sources.

The local hospitals here list their clinical trials on their website (again, Dana and Mass Gen'l). You may have something available at John Hopkins or Kim's hospital.

Kim will have her good days and her bad days. If you run a search on pain meds, people always list them off in their posts. The Ana-Trampoline sounding med (correct spelling under head pains) was given to me during treatment to help with some of the psycho sematic issues related to treatment. It helped to give me a good night's sleep, which no one can say is hurtful. It's also a muscle relaxer apparently, which may help her headaches (and what I'm currently using it for post-treatment). It's an old anti-depressant, so maybe they can presribe it at anti-depressant levels for her depression, too. Take out a bunch of birds with one stone.

Our prayers are with you, as they are with everyone going through a difficult time here. Please continue to keep us posted.

Sabrina

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Just wanted to update everyone on Kim's progress. Her first Chemo appointment is on Tuesday. The doctor said that she will have chemo once a week for six weeks, and then they will take a PET scan to see if it is making any progress. According to the chemo specialist, she will not lose her hair during this treatment. Her pain meds have also been increased since she is still in a great deal of pain. Kim has also gained 5 pounds which is great news to us! The doctor ordered her a hospital bed from hospice (it should come next week) to help with Kim's swelling. Her face is swollen since she is lying flat instead of elevated. (Pillows just aren't working) She still has low spirits, but we keep trying to instill some hope into her.

I'll let you all know how chemo goes next week.

Bless you all.


Sister of Kim, a 24 year old cancer fighter diagnosed on 12/5/04, who fought strong and hard and died with dignity and honor on 1/3/05.
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Thanks for keeping us updated - great news on the weight gain and additional progress. Please let her know Jim and I are sending much love and support.

Sabrina

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Hi everyone!

I just wanted to update you all. Kim had a really bad day on Monday. I know she will have good and bad days, so I wasn't too upset or concerned. On Tuesday she had her first chemo treatment. I regret that I could not go with her and my parents. Unforunately, school started up again, and I had to teach. According to my mom, Kim's treatment went very smooth. She did not have any pain and was not sick at all. This is great relief to us all. On Wed, the visiting nurse said that Kim had a slight fever, but she was not concerned. For now, everything is looking up. Kim even went out shopping with me, my mom, and my grandma this weekend (we were out for hours - at Kim's request).

Please keep your fingers crossed and continue to pray that the chemo works for her. Thanks for all your support.

God Bless,


Sister of Kim, a 24 year old cancer fighter diagnosed on 12/5/04, who fought strong and hard and died with dignity and honor on 1/3/05.
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AMK,

I'm so glad you've had some good news this week and that Kim was able to get out a bit. I'll be continuing to pray that this treatment does the job and gets rid of the cancer for good.

Cathy


Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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AMK, This is very good news. If Kim tolerated the chemo that well on the first treatment, maybe she is one of the lucky ones that chemo doesn't bother. That's great news. I think shopping is a wonderful therapy for this disease, also. My wife and I shopped for weeks for a new couch and love seat. Think they were my brain medication to distract me from the pain and discomfort of the treatments. Keep her shopping and she may get through this a lot easier.


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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amk-
This is in response to your Aug. 9 history of your sister. I understand your pain. My twin sister and I have both had cancer. Unfortunately, she didn't survive. I am battling cancer for the 4th time. I have found some inspirational books that have not only given me hope, but some concrete things to help my situation. "Beating Cancer with Nutrition" by Patrick Quillen, "I Beat Cancer" ( stories of 50 survivors), Awareness Publishing, and "A Cancer Battle Plan" by Anne Frahm. There is also a video by a cancer survivor, Lorraine Day, M.D. She chose to have no traditional medical care which is not my style. Her video is very Christian-based if that suits you. But she did survive. There are lots of miracles. I've misplaced the source, but she may have a website and the distributor is in Beverly, MA.

I wish you the best.

Nannygranny6

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