#43623 07-24-2004 03:00 AM | Joined: Jun 2004 Posts: 11 Member | OP  Member
Joined: Jun 2004 Posts: 11 | :rolleyes: Time for more surgery and chemo. I will be having the recurring tumor removed from my trachea on Sept. 3rd. I have opted to wait until Sept. because frankly I'm tired of always having surgery in the month of August and I thought a change would be nice.  I'll be having my next CT and office visit on Aug. 2nd and a PET scan after that to see if it could have spread back to my liver. My last CT showed that there was an increase in the size and number of nodules in both lungs. I don't know what kind of chemo. I'll be using yet. Nothing new and promising to try according to my Onc. Any ideas? I have been having a great deal of bleeding from this tumor which is blocking more than half of my trachea. Any suggestions on how to curb it? It usually goes for about 30min. and then it kind of coagulates over and stops for awhile. Just a minor inconvenience is all. :p Thanks for listening, Much Love, Laughter, Light, and Healing to all of you, Candle 
SSC Larynx/Supraglottic Laryngectomy'98. Max Radiat-'98,'01. Liver resect-'00. Metastasis to lt lung'02&rt lung'04. Carboplatin&Taxol&Ifosfamide&Taxotere'00.Cetuximab'02.Cysplatin&Topotecan'03.
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#43624 07-24-2004 05:45 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Candle, will be praying for your surgeon that his hands be guided and for you that you have minimal discomfort and complete recovery.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#43625 07-24-2004 12:30 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Hi Candle,
I wish I had some answers for what you're dealing with right now regarding chemo (I had cisplatin)and the problems you're experiencing with bleeding but unfortunately all I can offer are my prayers that your scans will have good results and that your recovery will be a speedy one. Keep up your great attitude, it's very contagious.
Prayers coming your way - Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#43626 07-25-2004 03:07 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Candle,
Joining in the prayers for you and your family. You have been thru so much already. My husband had some of those same chemo drugs and it wasn't too bad on him.
God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#43627 07-25-2004 09:11 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Candle,
I am sorry I don't have answers to your questions but I did want you to know I will be praying for you and your family.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#43628 07-26-2004 06:59 AM | Joined: May 2004 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: May 2004 Posts: 80 | candle,
i'm not sure if this is helpful, but just in case. my sister's oncologist told us about a study that has shown really good results from combination of radiation + herbitox. he said he couldn't use it for my sister because apparently herbitox has not yet been approved for head and neck cancers and so the cost would not be covered by private or government insurances.
sorry about what you've got to deal with again. you're in my thoughts. wishing you healing and peace.
gita
sister diagnosed 11/03 SCC maxilla keratenizing stg IV T1N1Mx; 4-7 positive lymph nodes; dissection 12/03 left upper pallette removd; radiaton left side 35 sessions 2/04-4/04; recurrence same side 4/04; chemo began 5/04 incl cisplatine, 5fu, taxotere
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#43629 07-26-2004 07:39 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | candle, my thoughts and prayers go out to you. God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#43630 07-26-2004 07:44 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Gita, are you sure you didn't mean Herceptin?
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#43631 07-26-2004 07:53 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Candle
Just to let you you I'll be praying for you, that the docs can find the right treatment plan for you..and to give you the strengh you need..
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#43632 07-26-2004 11:00 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Gita, I think the drug you mean is Erbitux from Imclone of Martha Stewart fame. It has had some good success with head and neck cancers used in combo with radiation. They may have some trials going on for H & N cancers. Take care, Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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